• Georgetown University
    Department of Philosophy
    Associate Professor
  • Georgetown University
    Kennedy Institute of Ethics
    Senior Research Scholar
  • The Greenwall Foundation
    Faculty Scholar
  • The Hastings Center
    Senior Bioethics Advisor & Fellow
Emory University
Department of Philosophy
PhD, 2017
APA Eastern Division
CV
Washington, DC, United States of America
  •  1
    Introduction to Volume 3
    Journal of Philosophy of Disability 3 3-6. 2023.
  •  329
    Drawing upon the life and work of S. Kay Toombs, I explore the impact and import of phenomenological accounts of disability for the existentialist tradition. Through the case of multiple sclerosis, a noncongenital, late-onset, and degenerative disability, I show how the general structures that emerge from its lived experience largely support a mere-difference view of disability and highlight the need for an equitably habitable world. I further argue that phenomenological accounts of disability d…Read more
  •  408
    The New Hysteria: Borderline Personality Disorder and Epistemic Injustice
    with Natalie Dorfman
    International Journal of Feminist Approaches to Bioethics 16 (2): 162-181. 2023.
    The diagnostic category of borderline personality disorder (BPD) has come under increasing criticism in recent years. In this paper, we analyze the role and impact of epistemic injustice, specifically testimonial injustice, in relation to the diagnosis of BPD. We first offer a critical sociological and historical account, detailing and expanding a range of arguments that BPD is problematic nosologically. We then turn to explore the epistemic injustices that can result from a BPD diagnosis, showi…Read more
  •  4
    Editor’s Introduction
    Journal of Philosophy of Disability 2 3-5. 2022.
  •  393
    Ableist attitudes and structures regarding disability are increasingly recognized across all sectors of healthcare delivery. After Dobbs, novel questions arose in the USA concerning how to protect reproductive autonomy while avoiding discrimination against and devaluation of disabled persons. As a case study, we examine the Louisiana’s Department of Public Health August 1st Emergency Declaration, “List of Conditions that shall deem an Unborn Child ‘Medically Futile.’” We raise a number of medica…Read more
  •  903
    From the Eyeball Test to the Algorithm — Quality of Life, Disability Status, and Clinical Decision Making in Surgery
    with Charles Binkley and Andrew Shuman
    New England Journal of Medicine 14 (387): 1325-1328. 2022.
    Qualitative evidence concerning the relationship between QoL and a wide range of disabilities suggests that subjective judgments regarding other people’s QoL are wrong more often than not and that such judgments by medical practitioners in particular can be biased. Guided by their desire to do good and avoid harm, surgeons often rely on "the eyeball test" to decide whether a patient will or will not benefit from surgery. But the eyeball test can easily harbor a range of implicit judgments and bi…Read more
  •  1
    Expanding Diversity, Equity, and Inclusion to Disability: Opportunities for Biological Psychiatry
    Biological Psychiatry: Cognitive Neuroscience and Neuroimaging 7 (12): 1280-1288. 2022.
    Given its subject matter, biological psychiatry is uniquely poised to lead STEM DEI initiatives related to disability. Drawing on literatures in science, philosophy, psychiatry, and disability studies, we outline how that leadership might be undertaken. We first review existing opportunities for the advancement of DEI in biological psychiatry around axes of gender and race. We then explore the expansion of biological psychiatry’s DEI efforts to disability, especially along the lines of represent…Read more
  •  368
    Rethinking Fetal Personhood in Conceptualizing Roe
    with Rosemarie Garland-Thomson
    American Journal of Bioethics 22 (8): 64-68. 2022.
    In this open peer commentary, we concur with the three target articles’ analysis and positions on abortion in the special issue on Roe v. Wade as the exercise of reproductive liberty essential for the bioethical commitment to patient autonomy and self-determination. Our proposed OPC augments that analysis by explicating more fully the concept crucial to Roe of fetal personhood. We explain that the development and use of predictive reproductive technologies over the fifty years since Roe has chan…Read more
  •  610
    The Normate: On Disability, Critical Phenomenology, and Merleau-Ponty’s Cézanne
    Chiasmi International: Trilingual Studies Concerning Merleau-Ponty's Thought 24 199-218. 2022.
    In the essay “Cézanne’s Doubt,” Merleau-Ponty explores the relationship between Paul Cézanne’s art and his embodiment. The doubt in question is ultimately about the meaning of his disabilities. Should Cézanne’s disabilities or impairments shape how we interpret his art or should they instead be treated as incidental, as mere biographical data? Although Merleau-Ponty's essay isn’t intended to be phenomenological, its line of questioning is as much about lived experience as it is about art critici…Read more
  •  660
    The Life Worth Living: Disability, Pain, and Morality
    University of Minnesota Press. 2022.
    The Life Worth Living investigates the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Building on decades of activism and scholarship, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision for an anti-ableist moral future. The introduction and first chapter are available to download here. Table of Contents: Introduction: The Ableist Conflation. Part I: Pain. 1. Theories of Pain. 2. A Phenom…Read more
  •  435
    Heidegger, Embodiment, and Disability
    Epoché: A Journal for the History of Philosophy 26 (1): 183-201. 2021.
    Most interpreters of Heidegger’s reflections on the body maintain that—whether early, middle, or late in the Gesamtausgabe—Dasein’s or the mortal’s openness to being/beyng is the ground of the fleshly or bodily (das Leibliche), but not the reverse. In this paper, I argue that there is evidence from Heidegger’s own oeuvre demonstrating that this relationship is instead mutually reciprocal. That is to say, I contend that corporeal variability is constitutive of Dasein’s openness to being just as D…Read more
  •  264
    Introducing The Journal of Philosophy of Disability
    Journal of Philosophy of Disability 1 (1): 3-10. 2021.
    This is the introduction to the inaugural issue of The Journal of Philosophy of Disability.
  •  243
    The Complex Relationship Between Disability Discrimination and Frailty Scoring
    with Charles E. Binkley and Andrew Shuman
    American Journal of Bioethics 21 (11): 74-76. 2021.
    In "Frailty Triage: Is Rationing Intensive Medical Treatment on the Grounds of Frailty Ethical?," Wilkinson (2021) argues that the use of frailty scores in ICU triage does not necessarily involve discrimination on the basis of disability. In support of this argument, he claims, “it is not the disability per se that the score is measuring – rather it is the underlying physiological and physical vulnerability." While we appreciate the attention Wilkinson explicitly pays to disability in this piece…Read more
  •  360
    Normate
    In Gail Weiss, Ann V. Murphy & Gayle Salamon (eds.), Fifty Concepts for a Critical Phenomenology, Nothwestern University Press. pp. 243-48. 2019.
    This short encyclopedia entry defines the concept of the normate.
  •  657
    The Disability Bioethics Reader (edited book)
    Routledge. 2022.
    Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability, lack engagement with decades of empirical and theoretical scholarship spanning the social sciences and humanities in the multidisciplinary field of disability studies, and avoid serious consideration of the history of disabilit…Read more
  •  705
    Against Intuitive Horribleness
    Episteme 21 (2). 2024.
    Testimony by disabled people concerning the relationship between their experiences and overall well-being has long been an object of social scientific and humanistic study. Often discussed in terms of “the disability paradox,” these studies contrast the intuitive horribleness of certain impaired states against the testimonial evidence suggesting that people in such states do not in fact experience their lives as horrible. Explanations for why such testimonial evidence is suspect range from claim…Read more
  •  934
    Ableism and Ageism: Insights from Disability Studies for Aging Studies
    with Anna Landre
    In Kate de Meideros, Marlene Goldman & Thomas Cole (eds.), Critical Humanities and Aging, Routledge. pp. 118-29. 2022.
    [This piece is written for those working in social gerontology and aging studies, with the aim of bringing insights from disability studies and philosophy of disability to bear on enduring debates in those fields.] The guiding question of humanistic age-studies—What does it mean to grow old?—cannot be answered without reflecting on disability. This is not simply because growing old invariably means becoming impaired in various ways, but also because the discriminations and stigmas involved in ag…Read more
  •  643
    Against Personal Ventilator Reallocation
    with Laura Guidry-Grimes and Katie Savin
    Cambridge Quarterly of Healthcare Ethics 30 (2): 272-284. 2020.
    The COVID-19 (Coronavirus disease of 2019) pandemic has led to intense conversations about ventilator allocation and reallocation during a crisis standard of care. Multiple voices in the media and multiple state guidelines mention reallocation as a possibility. Drawing upon a range of neuroscientific, phenomenological, ethical, and sociopolitical considerations, the authors argue that taking away someone’s personal ventilator is a direct assault on their bodily and social integrity. They conclud…Read more
  •  589
    Reforming Informed Consent: On Disability and Genetic Counseling
    with Elizabeth Dietz
    In Michael J. Deem, Emily Farrow & Robin Grubs (eds.), The Oxford Handbook of Genetic Counseling, Oxford University Press Usa. 2023.
    Informed consent is a central concept for empirical and theoretical research concerning pregnancy management decisions and is often taken to be one of the more fundamental goals of the profession of genetic counseling. Tellingly, this concept has been seen by disability communities as salutary, despite longstanding critiques made by disability activists, advocates, and scholars concerning practices involved in genetic counseling more generally. In this chapter, we show that the widespread faith …Read more
  •  595
    Since the completion of the human genome project in 2003, genomic sequencing, analysis, and interpretation have become staples of research in medicine and the life sciences more generally. While much ink has been spilled concerning genomics’ precipitous rise, there is little agreement among scholars concerning its meaning, both in general and with respect to our current moment. Some claim genomics is neither new, nor noteworthy; others claim it is a novel and worrisome instrument of newgenics. C…Read more
  •  396
    Merleau-Ponty claims that the idea of objective knowledge is supported by "our reveries." My aim in this paper is to explore this argument with respect to the idea of health. As a case study, I focus on bioethical issues surrounding return of results of incidental variants with respect to the use of genetic and genomic screening technologies (GSTs) in newborn and pediatric contexts. Drawing on a range of Merleau-Ponty’s texts, I argue that this case suggests the modern idea of health to turn lar…Read more
  •  3453
    Disability and White Supremacy
    Critical Philosophy of Race 10 (1): 48-70. 2022.
    It is widely known that Black people are significantly more likely to be killed by the police in the United States of America than white people. What is less widely known is that nearly half of all people killed by the police are disabled people. The aim of this paper is to better understand the intersection of racism and ableism in the USA. Contributing to the growing literature at the intersection of philosophy of disability and critical philosophy of race, I argue that theories concerning whi…Read more
  •  609
    This paper has two goals. The first is to argue that the field of bioethics in general and the literature on ideal vs. nonideal theory in particular has underemphasized a primary problem for normative theorizing: the role of conditioning principles. I define these as principles that implicitly or explicitly ground, limit, or otherwise determine the construction and function of other principles, and, as a result, profoundly impact concept formation, perception, judgment, and action, et al. The se…Read more
  •  917
    Disability and Social Epistemology
    In Jennifer Lackey & Aidan McGlynn (eds.), Oxford Handbook of Social Epistemology, Oxford University Press. 2024.
    This chapter canvases a number of ways that issues surrounding disability intersect with social epistemology. We begin with a discussion of how social epistemology as a field and debates concerning epistemic injustice in particular would benefit from further (a) engaging the fields of disability studies and philosophy of disability and (b) more directly addressing the problem of ableism. In section two, we turn to issues of testimony, “intuitive horribleness,” and their relationship to debates c…Read more
  •  380
    Moving Through Capacity Space: Mapping Disability and Enhancement
    with Nicholas Greig Evans and Kaylee R. Johnson
    Journal of Medical Ethics 47 (11): 748-755. 2021.
    In this paper, we highlight some problems for accounts of disability and enhancement that have not been sufficiently addressed in the literature. The reason, we contend, is that contemporary debates that seek to define, characterise or explain the normative valence of disability and enhancement do not pay sufficient attention to a wide range of cases, and the transition between one state and another. In section one, we provide seven cases that might count as disability or enhancement. We explain…Read more
  •  371
    Disability and the problem of suffering
    Journal of Medical Ethics 46 (8): 547-547. 2020.
    I am grateful to Philip Reed for his article ‘Expressivism at the Beginning and End of Life’. His piece compellingly demonstrates the import of expanding analyses concerning the expressivist thesis beyond the reproductive sphere to the end-of-life sphere. I hope that his intervention spurns further work on this connection. In what follows, I want to focus on what I take to be moments of slippage in his use of the concept of disability, a slippage to which many disability theorists succumb. In sh…Read more
  •  258
    The guiding premise from which this special report begins is the conviction and hope that justice is at the normative heart of medicine and that it is the perpetual task of bioethics to bring concerns of justice to bear on medical practice. On such an account, justice is medicine's lifeblood, that by which it contributes to life as opposed to diminishing it. It is in this larger, historical, intersectional, critical, and ethically minded context that we must approach pressing questions facing me…Read more
  •  425
    Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
    with Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Rosemarie Garland-Thomson, Anita Tarzian, Doron Dorfman, and Joseph J. Fins
    Hastings Center Report 50 (3): 28-32. 2020.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements …Read more