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16Cooperation & Liaison between Universities & Editors (CLUE): recommendations on best practiceResearch Integrity and Peer Review 6 (1). 2021.BackgroundInaccurate, false or incomplete research publications may mislead readers including researchers and decision-makers. It is therefore important that such problems are identified and rectified promptly. This usually involves collaboration between the research institutions and academic journals involved, but these interactions can be problematic.MethodsThese recommendations were developed following discussions at World Conferences on Research Integrity in 2013 and 2017, and at a specially…Read more
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6A Framework to Govern the Use of Health Data for Research in Africa: A South African PerspectiveIn Tomas Zima & David N. Weisstub (eds.), Medical Research Ethics: Challenges in the 21st Century, Springer Verlag. pp. 485-499. 2022.Genomic and biobank research has undergone exponential growth in Africa. Traditionally this resulted in exploitative research practices in the form of so-called ‘parachute research’ with little or no consideration for capacity building. However there has been a recent growth of research and consortia where capacity building and equitable research have been a key objective of the research, and attention is now focused on the governance of this research. The importance of solidarity in genomic bio…Read more
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8The cambridge handbook of health research regulation Graeme Laurie, Edward Dove, Agomoni Ganguli‐Mitra, Catriona Mamillan, Emily Postan, Nayha Sethi, and Annie Sorbie (Eds.) Cambridge, UK: Cambridge University Press, 2021. DOI 10.1017/9781108620024. Open Access. ISBN 978‐108‐47597‐6 Hard copy. 421 pp. $195 (review)Bioethics 36 (5): 605-607. 2022.Bioethics, Volume 36, Issue 5, Page 605-607, June 2022.
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15Promoting responsible research conduct in a developing world academic contextSouth African Journal of Bioethics and Law 6 (1): 19. 2013.CITATION: Horn, L. M. 2015. Promoting responsible research conduct in a developing world academic context. South African Journal of Bioethics and Law, 6:21-24, doi:10.7196/SAJBL.256.
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18Research Vulnerability: An Illustrative Case Study From the South African Mining IndustryDeveloping World Bioethics 7 (3): 119-127. 2007.The concept of ‘vulnerability’ is well established within the realm of research ethics and most ethical guidelines include a section on ‘vulnerable populations’. However, the term ‘vulnerability’, used within a human research context, has received a lot of negative publicity recently and has been described as being simultaneously ‘too broad’ and ‘too narrow’.1 The aim of the paper is to explore the concept of research vulnerability by using a detailed case study – that of mineworkers in post‐apa…Read more
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327Public health, beneficence and cosmopolitan justiceSouth African Journal of Bioethics and Law 8 (2): 30. 2015.This article proposes that, in line with moral-cosmopolitan theorists, affluent nations have an obligation, founded in justice and not merely altruism or beneficence, to share the responsibility of the burden of public health implementation in low-income contexts. The current Ebola epidemic highlights the fact that countries with under-developed health systems and limited resources cannot cope with a significant and sudden health threat. The link between burden of disease, adverse factors in the…Read more
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496Public health and social justice: Forging the linksSouth African Journal of Bioethics and Law 8 (2): 26. 2015.The purpose of this article is to explore the concept and scope of public health and to argue that particularly in low-income contexts, where social injustice and poverty often impact significantly on the overall health of the population, the link between public health and social justice should be a very firm one. Furthermore, social justice in these contexts must be understood as not simply a matter for local communities and nation-states, but in so far as public health is concerned, as a matte…Read more
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34Promoting Responsible Research Conduct: A South African PerspectiveJournal of Academic Ethics 15 (1): 59-72. 2017.A great deal of effort has gone into developing capacity in the sphere of human research protection programmes in South Africa and Africa over the last decade or more, by several international organisations. However the promotion of the broader agenda of research integrity or ‘RCR’ has lagged behind. From a global perspective South Africa and other African countries are actively involved in research endeavours and collaborations across a very broad spectrum of scientific fields. For this researc…Read more
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28Research vulnerability: An illustrative case study from the south african mining industryDeveloping World Bioethics 7 (3). 2007.ABSTRACTThe concept of ‘vulnerability’ is well established within the realm of research ethics and most ethical guidelines include a section on ‘vulnerable populations’. However, the term ‘vulnerability’, used within a human research context, has received a lot of negative publicity recently and has been described as being simultaneously ‘too broad’ and ‘too narrow’.1 The aim of the paper is to explore the concept of research vulnerability by using a detailed case study – that of mineworkers in …Read more
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62Powers and Faden's Theory of Social Justice Applied to the Problem of Foetal Alcohol Syndrome in South AfricaPublic Health Ethics 6 (1): 3-10. 2013.South Africa has the highest rate of foetal alcohol syndrome (FAS) in the world. The problem of alcohol abuse in pregnancy has very deep historical roots that are intertwined with the injustices of both apartheid and pre-apartheid colonialism. Much of the research that is being done in these communities is focused on identifying the epidemiological variables associated with these patterns of alcohol abuse. The underlying reasons as to why these patterns continue seem to remain largely obscured f…Read more
Stellenbosch, Western Cape, South Africa