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    IRB chairs' perspectives on genotype-driven research recruitment
    with Laura M. Beskow, Emily E. Namey, Daniel K. Nelson, and Alexandra Cooper
    IRB: Ethics & Human Research 34 (3): 1. 2012.
    Recruiting research participants based on genetic information generated about them in a prior study is a potentially powerful way to study the functional significance of human genetic variation, but it also presents ethical challenges. To inform policy development on this issue, we conducted a survey of U.S. institutional review board chairs concerning the acceptability of recontacting genetic research participants about additional research and their views on the disclosure of individual genetic…Read more