Eva Kittay

Contemporary industrialized societies have been confronted with the fact and consequences of women's increased participation in paid employment. Whether this increase has resulted from women's desire for equality or from changing economic circumstances, women and men have been faced with a crisis in the organization of work that concerns dependents, that is, those unable to care for themselves. This is labor that has been largely unpaid, often unrecognized, and yet is indispensable to human society.

Equal moral status for all human beings does not commit us to the malignant exclusionary practices we find in racism and pernicious nationalism. Racism (like the other harmful “ism”) involves a group that is constituted by appropriating to one’s own “primal group” a set “desirable” intrinsic properties (or traits) and expelling from the primal group those with the undesirable properties through subjugation, exploitation, sterilization, or extermination. The moral harm in racism is practiced by a ‘constituted’ group that must always police its borders with violence and justifications for its privilege. The Nazi’s Project T4, which exterminated mentally disabled children born of German parents, and the subsequent exterminations of racialized groups, in particular the Jews, were regarded as the one process of cleansing Germany and its conquered territories of defective and inferior beings. Rather than being instances of “preferring one’s own,” the racist project was that of constituting the group by appropriating for itself all the desirable traits and expelling all undesirable ones, thus linking ablism and racism.

As parents of a young woman who very much resembles Ashley, we recognize the way her parents speak of their daughter’s preciousness, and of the love and joy she brings into their life. We know too well the hardships associated with rearing a child with severe physical and intellectual disabilities, especially in our own society, unyielding as it is to the medical needs even “normals” have. We would not have our daughter Sesha undergo similar interventions. We do not believe she is a perpetual child, even if her intellectual capacities do not exceed those of a child, for she has lived for thirty-seven years in this world and with that has acquired knowledge, sensitivities, and sensibilities that no child of “comparable” capacities could have.