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8Differences That Make a Difference in Disorders of ConsciousnessAmerican Journal of Bioethics Neuroscience 8 (3): 131-134. 2017.
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27Deep Brain Stimulation as a Probative Biology: Scientific Inquiry and the Mosaic DeviceAmerican Journal of Bioethics Neuroscience 3 (1): 4-8. 2012.Building upon an earlier critique of the Food and Drug Adminstration (FDA) granting of a humanitarian device exemption for deep brain stimulation in treatment-resistant obsessive compulsive disorder, this article considers how we regulate and finance DBS. It suggests that these devices are mosaic in nature: both potentially therapeutic and probative and that their dual roles need to be appreciated to maximize their therapeutic and investigational potential.
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19Off the Charts: Medical documentation and selective redaction in the age of transparencyPerspectives in Biology and Medicine 61 (1): 118-129. 2018.A 47-year-old woman with a history of anxiety disorder is admitted to the hospital for shortness of breath. On the third day of hospitalization, she asks her physician for a copy of all documents pertaining to her care. What expectation should she have for full disclosure? Are there limits on her access to her medical records and do her physician's concerns about professional privilege matter?The virtues of transparency in medicine have been well described. As proponents of transparency, we favo…Read more
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7Confronting Traumatic Brain Injury: Devastation, Hope and Healing (review)Hastings Center Report 29 (2): 49. 1999.
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24Mosaic Decisionmaking and Reemergent Agency after Severe Brain InjuryCambridge Quarterly of Healthcare Ethics 27 (1): 163-174. 2018.
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1Death, dying and informatics: misrepresenting religion on MedLineBMC Medical Ethics 6 (1): 6. 2005.Background The globalization of medical science carries for doctors worldwide a correlative duty to deepen their understanding of patients' cultural contexts and religious backgrounds, in order to satisfy each as a unique individual. To become better informed, practitioners may turn to MedLine, but it is unclear whether the information found there is an accurate representation of culture and religion. To test MedLine's representation of this field, we chose the topic of death and dying in the th…Read more
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3The Face of Finitude (review)Hastings Center Report 25 (2): 38-38. 2012.Book reviewed in this article: How We Die. By Sherwin B. Nuland. New York: Alfred A. Knopf.
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Protecting human subjects in brain research: a pragmatic perspectiveNeuroethics. Defining the Issues in Theory, Practice and Policy. forthcoming.
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45Neuroethics and the lure of technologyIn Judy Illes & Barbara J. Sahakian (eds.), Oxford Handbook of Neuroethics, Oxford University Press. pp. 895--907. 2011.Neuroethics, as a domain of inquiry, was made necessary by this interdisciplinary march of technology that has been much documented and the resulting synergism, which resulted in the development of neuroimaging, deep brain stimulation, and advanced neuropharmaceutics. Closing the loop from discovery of basic mechanisms of illness to knowledge of structure and function en route to restorative therapeutics is a long way from earlier efforts to use electrical stimulation to address human maladies. …Read more
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13The Physician-Assisted Suicide and Euthanasia Debate: An Annotated Bibliography of Representative ArticlesJournal of Clinical Ethics 5 (4): 329-340. 1994.
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13Introduction to the Special IssuePerspectives in Biology and Medicine 60 (1): 1-1. 2017.Bioethics has been an interdisciplinary field since its inception. From the founding of the Hastings Center in 1969 and the Kennedy Institute of Ethics in 1971, scholars from many disciplines have come together to create a field of study strengthened by its interdisciplinarity. In this special issue of Perspectives in Biology and Medicine, we celebrate the interdisciplinary character of bioethics by means of essays by eight distinguished bioethics scholars hailing from backgrounds in philosophy,…Read more
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46The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems—CORRIGENDUMCambridge Quarterly of Healthcare Ethics 26 (1): 180. 2017.
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57The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and SystemsCambridge Quarterly of Healthcare Ethics 25 (4): 623-633. 2016.
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19Mediative Fluency and Futility DisputesPerspectives in Biology and Medicine 60 (3): 373-382. 2018.It is generally agreed that physicians should not provide futile interventions, for the obvious reason that an intervention without utility causes harm without benefit. However, despite efforts to standardize a definition, there is a lack of universal consensus as to what constitutes “futility.” Two recent policy statements object to the terminology of futility based on the lack of a universal definition. Schneiderman, Jecker, and Jonsen object to the proposed alternative terminology of “inappro…Read more
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15Rethinking Disorders of Consciousness: New Research and Its ImplicationsHastings Center Report 35 (2): 22. 2005.
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12How We DieHastings Center Report 25 (2): 38. 1995.Book reviewed in this article: How We Die. By Sherwin B. Nuland. New York: Alfred A. Knopf.
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28My Time in MedicinePerspectives in Biology and Medicine 60 (1): 19-32. 2017.Autobiographical essays can be an indulgence. Often self-congratulatory and low on self-reflection, they seldom serve a purpose other than to stoke nostalgia. So when given this opportunity to write about my life in medicine and bioethics, I decided I would take stock, and not simply celebrate whatever accomplishments I might have had. Rather, I would use this opportunity to look for themes that linked the decades together. My hope was that the process might assemble the mosaic that has been my …Read more
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18Giving Voice to ConsciousnessCambridge Quarterly of Healthcare Ethics 25 (4): 583-599. 2016.Abstract:In the 2015 David Kopf Lecture on Neuroethics of the Society for Neuroscience, Dr. Joseph Fins presents his work on neuroethics and disorders of consciousness through the experience of Maggie and Nancy Worthen, a young woman who sustained a severe brain injury and her mother who cared for her. The central protagonists in his book,Rights Come to Mind: Brain Injury, Ethics and the Struggle for Consciousness(Cambridge University Press, 2015), their experience is emblematic of the challenge…Read more
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8Fee Disclosure at a CostHastings Center Report 44 (6): 3-3. 2014.A commentary on “Financial Side Effects: Why Patients Should Be Informed of Costs,” by Alicia Hall, in the May‐June 2014 issue.
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17The Face of FinitudeHastings Center Report 25 (2): 38-38. 1995.Book reviewed in this article: How We Die. By Sherwin B. Nuland. New York: Alfred A. Knopf.
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43The Ethical Imperative to Think about ThinkingCambridge Quarterly of Healthcare Ethics 23 (4): 386-396. 2014.While the medical ethics literature has well explored the harm to patients, families, and the integrity of the profession in failing to disclose medical errors once they occur, less often addressed are the moral and professional obligations to take all available steps to prevent errors and harm in the first instance. As an expanding body of scholarship further elucidates the causes of medical error, including the considerable extent to which medical errors, particularly in diagnostics, may be at…Read more
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2Clinical pragmatism and the care of brain damaged patients: Towards a palliative neuroethics for disorders of consciousnessIn Steven Laureys (ed.), Boundaries of Consciousness, Elsevier. 2006.
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79Guest Editorial: The Many Voices of Spanish Bioethics—An IntroductionCambridge Quarterly of Healthcare Ethics 18 (3): 214. 2009.
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64A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics ConsultantsAmerican Journal of Bioethics 16 (3): 15-24. 2016.Although clinical ethics consultation is a high-stakes endeavor with an increasing prominence in health care systems, progress in developing standards for quality is challenging. In this article, we describe the results of a pilot project utilizing portfolios as an evaluation tool. We found that this approach is feasible and resulted in a reasonably wide distribution of scores among the 23 submitted portfolios that we evaluated. We discuss limitations and implications of these results, and sugge…Read more
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Cornell UniversityRegular Faculty
Ithaca, New York, United States of America