•  64
    A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants
    with Eric Kodish, Felicia Cohn, Marion Danis, Arthur R. Derse, Nancy Neveloff Dubler, Barbara Goulden, Mark Kuczewski, Mary Beth Mercer, Robert A. Pearlman, Martin L. Smith, Anita Tarzian, and Stuart J. Youngner
    American Journal of Bioethics 16 (3): 15-24. 2016.
    Although clinical ethics consultation is a high-stakes endeavor with an increasing prominence in health care systems, progress in developing standards for quality is challenging. In this article, we describe the results of a pilot project utilizing portfolios as an evaluation tool. We found that this approach is feasible and resulted in a reasonably wide distribution of scores among the 23 submitted portfolios that we evaluated. We discuss limitations and implications of these results, and sugge…Read more
  •  108
    Neuroimaging and disorders of consciousness: Envisioning an ethical research agenda
    with Judy Illes, James L. Bernat, Joy Hirsch, Steven Laureys, and Emily Murphy
    American Journal of Bioethics 8 (9). 2008.
    The application of neuroimaging technology to the study of the injured brain has transformed how neuroscientists understand disorders of consciousness, such as the vegetative and minimally conscious states, and deepened our understanding of mechanisms of recovery. This scientific progress, and its potential clinical translation, provides an opportunity for ethical reflection. It was against this scientific backdrop that we convened a conference of leading investigators in neuroimaging, disorders…Read more
  •  18
    Organ Transplantation for Individuals with Neurodevelopmental Disorders
    with Kim J. Overby
    Cambridge Quarterly of Healthcare Ethics 25 (2): 272-281. 2016.
  •  30
    Credentialing the Clinical Ethics Consultant: An Academic Medical Center Affirms Professionalism and Practice
    with Cathleen A. Acres, Kenneth Prager, and George E. Hardart
    Journal of Clinical Ethics 23 (2): 156-164. 2012.
    In response to national trends calling for increasing accountability and an emerging dialogue within bioethics, we describe an effort to credential clinical ethicists at a major academic medical center. This effort is placed within the historical context of prior calls for credentialing and certification and efforts currently underway within organized bioethics to engage this issue. The specific details, and conceptual rationale, behind the New York-Presbyterian Hospital’s graduated credentialin…Read more
  •  84
    In Memoriam: Dr. Edmund Pellegrino's Legacy: Secure in the Annals of Medicine
    Kennedy Institute of Ethics Journal 24 (2): 97-104. 2014.
    I am honored to pay tribute to Dr. Pellegrino and a bit humbled as there are so many others who would want to have this opportunity and who knew Dr. Pellegrino better than I. Tom Beauchamp suggested that I might place Dr. Pellegrino into the broader context of the history of medicine. He wrote Thaddeus Pope:Without being disrespectful of the many celebrated figures from Hippocrates to Percival, my view is that no physician has been more productive in the field or made a greater contribution than…Read more
  •  54
    Commercialism in the Clinic: Finding Balance in Medical Professionalism
    Cambridge Quarterly of Healthcare Ethics 16 (4): 425. 2007.
    There is a palpable malaise in American medicine as clinical practice veers off its moorings, swept along by a new commercialism that is displacing medical professionalism and its attendant moral obligations. Although the sociology of this phenomenon is complex and multifactorial, I argue that this move toward medical commercialism was accelerated by the abortive efforts of the Clinton Administration's Health Security Act. Through an analysis of performative speech I show that, although the Clin…Read more
  •  12
    Care under the Influence
    with Samantha F. Knowlton
    Hastings Center Report 47 (1): 8-9. 2017.
    A forty-year-old man is brought to the emergency room by his wife at five in the morning, two hours after he fell down the stairs at home, hitting his head and injuring his arm. He tells the ER physician that he got up to get a drink of water and tripped in the dark. His speech is slurred, and he smells strongly of alcohol. Lab results reveal elevated liver enzymes, and his blood alcohol level is 0.1. His medical history is unremarkable. When asked about his alcohol consumption, he says he usual…Read more
  •  24
    Toward an Agile Defense of Patient Health Care Decisions
    with Meredith Stark
    American Journal of Bioethics 14 (3): 44-46. 2014.
    No abstract
  •  2
    Bioethics with Portfolio
    Hastings Center Report 24 (3): 4-4. 1994.
  •  50
    Patently controversial: Markets, morals, and the president's proposal for embryonic stem cell research
    with Madeleine Schachter
    Kennedy Institute of Ethics Journal 12 (3): 265-278. 2002.
    : This essay considers the implications of President George W. Bush's proposal for human embryonic stem cell research. Through the perspective of patent law, privacy, and informed consent, we elucidate the ongoing controversy about the moral standing of human embryonic stem cells and their derivatives and consider how the inconsistencies in the president's proposal will affect clinical practice and research
  •  4
    Islam and Informed Consent: Notes from Doha
    with Pablo Del Pozo
    Cambridge Quarterly of Healthcare Ethics 17 (3): 273-279. 2008.
    Informed consent is a perennial topic in bioethics. It has given the field a place in clinical practice and the law and is often the starting point for introductory instruction in medical ethics. One would think that nearly everything has been said and done on this well-worn topic.
  •  15
    Death, dying and informatics: misrepresenting religion on MedLine
    with Pablo Rodríguez Del Pozo
    BMC Medical Ethics 6 (1): 1-5. 2005.
    BackgroundThe globalization of medical science carries for doctors worldwide a correlative duty to deepen their understanding of patients' cultural contexts and religious backgrounds, in order to satisfy each as a unique individual. To become better informed, practitioners may turn to MedLine, but it is unclear whether the information found there is an accurate representation of culture and religion. To test MedLine's representation of this field, we chose the topic of death and dying in the thr…Read more