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71Clinical Ethics Committee case 6: Our patient wishes to take an unlisted drug even though we're not sure of his diagnosisClinical Ethics 4 (2): 59-63. 2009.
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3Synthetic Biology for Human Health: Issues for Ethical Discussion and Policy‐makingBioethics 27 (8). 2013.
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25“Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in SingaporeBMC Medical Ethics 21 (1): 1-11. 2020.Background We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data sharing are under-represented in prior attitudinal research. Methods We conducted seven focus groups with 62 participants in Singapore from May to July 2019. They were conducted in three languages and analysed …Read more
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31Clinical Ethics Committee Case 16: A request from an accident and emergency department - should we give our patient a blood transfusion?Clinical Ethics 6 (4): 154-158. 2011.
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36The role of patients in clinical ethics support: a snapshot of practices and attitudes in the United KingdomClinical Ethics 4 (3): 139-145. 2009.Clinical ethics committees (CECs) in the United Kingdom (UK) have developed significantly over the past 15 years. The issue of access to and participation in clinical ethics consultation by patients and family members has, however, gone largely unrecognized. There are various dimensions to this kind of contact, including patient notification, consent and participation. This study reports the first specific investigation of patient contact with UK CECs. A questionnaire study was carried out with …Read more
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45Clinical ethics consultation in Europe: a comparative and ethical review of the role of patientsClinical Ethics 4 (3): 131-138. 2009.Clinical ethics has developed significantly in Europe over the past 15 years and remains an evolving process. While sharing our experiences in different European settings, we were surprised to discover marked differences in our practice, especially regarding the position and role of patients. In this paper, we describe these differences, such as patient access to and participation or representation in ethics consults. We propose reasons to explain these differences, hypothesizing that they relat…Read more
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67The role of patients in European clinical ethics consultationClinical Ethics 4 (3): 109-110. 2009.
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24Ethical considerations for choosing between possible models for using NIPD for aneuploidy detectionJournal of Medical Ethics 38 (10): 614-618. 2012.Recent scientific advances mean the widespread introduction of non-invasive prenatal diagnosis (NIPD) for chromosomal aneuploidies may be close at hand, raising the question of how NIPD should be introduced as part of antenatal care pathways for pregnant women. In this paper, the authors examine the ethical implications of three hypothetical models for using NIPD for aneuploidy in state-funded healthcare systems and assess which model is ethically preferable. In comparing the models, the authors…Read more
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12The perils of a broad approach to public interest in health data research: a response to Ballantyne and SchaeferJournal of Medical Ethics 47 (8): 580-582. 2021.The law often calls on the concept of public interest for assistance. Privacy law makes use of this concept in several ways, including to justify consent waivers for secondary research on health information. Because the law sees information privacy as a means for individuals to control their personal information, consent can only be set aside in special circumstances. Ballantyne and Schaefer argue that only public interest, and only a broad conception of public interest, can do the special ‘norm…Read more
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14Technical Categories and Ethical Justifications: Why Cwik’s Approach is the Wrong Way Around for Categorizing Germ-Line Gene EditingAmerican Journal of Bioethics 20 (8): 27-29. 2020.Volume 20, Issue 8, August 2020, Page 27-29.
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19‘There is a lot of good in knowing, but there is also a lot of downs’: public views on ethical considerations in population genomic screeningJournal of Medical Ethics 47 (12). 2021.Publics are key stakeholders in population genomic screening and their perspectives on ethical considerations are relevant to programme design and policy making. Using semi-structured interviews, we explored social views and attitudes towards possible future provision of personalised genomic risk information to populations to inform prevention and/or early detection of relevant conditions. Participants were members of the public who had received information on their personal genomic risk of mela…Read more
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14Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy lawBMC Medical Ethics 21 (1): 1-10. 2020.Background: When a genetic mutation is identified in a family member, internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choosing not to communicate the information or failing to communicate the information despite intention to do so, respectively. The ethical obligations to prevent harm to at-risk relatives and promote the duty of care by ge…Read more
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29From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic TestingAJOB Empirical Bioethics 11 (1): 63-76. 2020.Background: Personal genomic testing (PGT) offers individuals genetic information about relationships, wellness, sporting ability, and health. PGT is increasingly accessible online, including in emerging markets such as Australia. Little is known about what consumers expect from these tests and whether their reflections on testing resonate with bioethics concepts such as autonomy. Methods: We report findings from focus groups and semi-structured interviews that explored attitudes to and experien…Read more
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66Artificial gametes: new paths to parenthood?Journal of Medical Ethics 31 (3): 184-186. 2005.A number of recent papers have described the successful derivation of egg and sperm precursor cells from mouse embryonic stem cells—so-called “artificial” gametes. Although many scientific questions remain, this research suggests numerous new possibilities for stem cell research and assisted reproductive technology, if a similar breakthrough is achieved with human embryonic stem cells. The novel opportunities raised by artificial gametes also prompt new ethical questions, such as whether same-se…Read more
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10Personal Genomics as an Interactive Web BroadcastAmerican Journal of Bioethics 9 (6-7): 27-29. 2009.No abstract
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31Should Parental Refusals of Newborn Screening Be Respected?Cambridge Quarterly of Healthcare Ethics 15 (2): 135-146. 2006.For over four decades, knowledge that symptoms of some inherited diseases can be prevented or reduced via early detection and treatment in newborns has underpinned state-funded screening programs in most developed countries. Conditions for which newborn screening is now a recognized preventative public health initiative include phenylketonuria, congenital hypothyroidism, and, more recently, cystic fibrosis and sickle cell disorder. The use of tandem mass spectrometry to detect conditions such as…Read more
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30Whither authenticity?American Journal of Bioethics 5 (3). 2005.This Article does not have an abstract
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32Clinical genetics and the problem with unqualified confidentialityAmerican Journal of Bioethics 6 (2). 2006.No abstract
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62Behavioural Genetics: Why Eugenic Selection is Preferable to EnhancementJournal of Applied Philosophy 23 (2): 157-171. 2006.Criminal behaviour is but one behavioural tendency for which a genetic influence has been suggested. Whilst this research certainly raises difficult ethical questions and is subject to scientific criticism, one recent research project suggests that for some families, criminal tendency might be predicted by genetics. In this paper, supposing this research is valid, we consider whether intervening in the criminal tendency of future children is ethically justifiable. We argue that, if avoidance of …Read more
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31Should We Undertake Genetic Research on Intelligence?Bioethics 13 (3-4): 327-342. 1999.Although the concept of intelligence is difficult to define, research has provided evidence for a significant genetic component. Attempts are now being made to use molecular genetic approaches to identify genes contributing to intelligence, and to determine the ways in which they interact with environmental variables. This research is then likely to determine the developmental pathways of intelligence, in an effort to understand mental handicap and learning disorders and develop new treatment st…Read more
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77The nature and significance of behavioural genetic informationTheoretical Medicine and Bioethics 25 (2): 89-111. 2004.In light of the human genome project, establishing the genetic aetiology of complex human diseases has become a research priority within Western medicine. However, in addition to the identification of disease genes, numerous research projects are also being undertaken to identify genes contributing to the development of human behavioural characteristics, such as cognitive ability and criminal tendency. The permissibility of this research is obviously controversial: will society benefit from this…Read more
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45Communication of genetic information within families: The case for familial comity (review)Journal of Bioethical Inquiry 3 (3): 161-166. 2006.Advances in genetic technologies raise a multitude of ethical issues, some of which give rise to novel dilemmas for medical practice. One of the most controversial problems arising in clinical genetics is that of confidentiality and who may disclose genetic health information. This paper considers the question of when it is appropriate for health professionals to disclose clinically significant genetic information without patient consent. Existing ethical principles offer little guidance in rela…Read more
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27Response to Open Peer Commentaries on “Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?”American Journal of Bioethics 9 (8): 6-7. 2009.This target article considers the ethical implications of providing prenatal diagnosis and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential harms d…Read more
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32Rethinking Pediatric Ethics ConsultationsAmerican Journal of Bioethics 15 (5): 26-28. 2015.Johnson and colleagues (2015) report a retrospective review of the experience of an ethics consultation service at a single, highly specialized children's hospital over an 11-year period. Despite i...
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47Prenatal Diagnosis and Abortion for Congenital Abnormalities: Is It Ethical to Provide One Without the Other?American Journal of Bioethics 9 (8): 48-56. 2009.This target article considers the ethical implications of providing prenatal diagnosis (PND) and antenatal screening services to detect fetal abnormalities in jurisdictions that prohibit abortion for these conditions. This unusual health policy context is common in the Latin American region. Congenital conditions are often untreated or under-treated in developing countries due to limited health resources, leading many women/couples to prefer termination of affected pregnancies. Three potential h…Read more
Areas of Specialization
Genetic Ethics |
Public Health |
Medical Ethics |
Reproductive Ethics |
Biotechnology Ethics |
Areas of Interest
Genetic Ethics |
Public Health |
Medical Ethics |
Reproductive Ethics |
Biotechnology Ethics |