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16A Cross-Cultural Dialogue on Health Care Ethics (edited book)Wilfrid Laurier Press. 2006.The ethical theories employed in health care today assume, in the main, a modern Western philosophical framework. Yet the diversity of cultural and religious assumptions regarding human nature, health and illness, life and death, and the status of the individual suggest that a cross-cultural study of health care ethics is needed. A Cross-Cultural Dialogue on Health Care Ethics provides this study. It shows that ethical questions can be resolved by examining the ethical principles present in each…Read more
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7Deliberation on Childhood Vaccination in Canada: Public Input on Ethical Trade-Offs in Vaccination PolicyAJOB Empirical Bioethics 12 (4): 253-265. 2021.Background Policy decisions about childhood vaccination require consideration of multiple, sometimes conflicting, public health and ethical imperatives. Examples of these decisions are whether vaccination should be mandatory and, if so, whether to allow for non-medical exemptions. In this article we argue that these policy decisions go beyond typical public health mandates and therefore require democratic input.Methods We report on the design, implementation, and results of a deliberative public…Read more
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40Public involvement in the governance of population-level biomedical research: unresolved questions and future directionsJournal of Medical Ethics 47 (7): 522-525. 2021.Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 experts and stakeholders using the World Café method to…Read more
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31Genetic Testing for Hereditary Disease: Attending to Relational ResponsibilityJournal of Clinical Ethics 12 (4): 361-372. 2001.
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86Social contract theory and just decision making: Lessons from genetic testing for the BRCA mutationsKennedy Institute of Ethics Journal 14 (2): 115-142. 2004.: Decisions about funding health services are crucial to controlling costs in health care insurance plans, yet they encounter serious challenges from intellectual property protection—e.g., patents—of health care services. Using Myriad Genetics' commercial genetic susceptibility test for hereditary breast cancer (BRCA testing) in the context of the Canadian health insurance system as a case study, this paper applies concepts from social contract theory to help develop more just and rational appro…Read more
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26Nursing and euthanasia: A narrative review of the nursing ethics literatureNursing Ethics 096973301984512. forthcoming.
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40CommentaryCambridge Quarterly of Healthcare Ethics 7 (4): 363-366. 1998.In Michael Stingl argues that the legalization of euthanasia can be made reasonable social policy only in the context of healthcare reform to deliver primary- and community-based care. Stingl accepts that euthanasia and that includes not only pain, but He is not worried The failure of the healthcare system to adequately respond to the needs of people who are suffering with chronic or terminal conditions may lead competent people to elect euthanasia. Stingl argues that it is the institutionalizat…Read more
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76The medicalization of dyingJournal of Medicine and Philosophy 18 (3): 269-279. 1993.Physician assisted suicide or active euthanasia is analyzed as a medicalization of the needs of persons who are suffering interminably. As with other medicalized responses to personal needs, the availability of active euthanasia will likely divert attention and resources from difficult social and personal aspects of the needs of dying and suffering persons, continuing the pattern of privatization of the costs of caregiving for persons who are candidates for active euthanasia, limiting the abilit…Read more
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27Should HECs involved in case review have a healthcare ethics consultant?HEC Forum 5 (3): 196-204. 1993.
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45Public consultation in ethics an experiment in representative ethicsJournal of Bioethical Inquiry 1 (1): 4-13. 2004.Genome Canada has funded a research project to evaluate the usefulness of different forms of ethical analysis for assessing the moral weight of public opinion in the governance of genomics. This paper will describe a role of public consultation for ethical analysis and a contribution of ethical analysis to public consultation and the governance of genomics/biotechnology. Public consultation increases the robustness of ethical analysis with a more diverse and rich accounts experiences. Consultati…Read more
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25A survey of calgary paediatricians’attitudes regarding the treatment of defective newbornsBioethics 5 (2): 139-149. 1991.
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12Narratives in Public Deliberation: Empowering Gene Editing Debate with StorytellingHastings Center Report 51 (S2): 85-91. 2021.Gene editing in the environment must consider uncertainty about potential benefits and risks for different populations and under different conditions. There are disagreements about the weight and balance of harms and benefits. Deliberative and community‐led approaches offer the opportunity to engage and empower diverse publics to co‐create responses and solutions to controversial policy choices in a manner that is inclusive of diverse perspectives. Stories, understood as situated accounts that r…Read more
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8Contemporary Issues in Paediatric EthicsLewiston, N.Y. ; Queenston, Ont. : E. Mellen Press. 1991.This collection of essays by a group of international scholars focuses on specific issues in bioethics and paediatrics. It reflects interdisciplinary approaches to practical problems at the level of policy and practice.
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85Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remainingResearch Ethics 9 (2): 55-77. 2013.Public participation is increasingly an aspect of policy development in many areas, and the governance of biomedical research is no exception. There are good reasons for this: biomedical research relies on public funding; it relies on biological samples and information from large numbers of patients and healthy individuals; and the outcomes of biomedical research are dramatically and irrevocably changing our society. There is thus arguably a democratic imperative for including public values in s…Read more
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34Moving From Understanding of Consent Conditions to Heuristics of TrustAmerican Journal of Bioethics 19 (5): 24-26. 2019.Volume 19, Issue 5, May 2019, Page 24-26.