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59A distinction in value: Intrinsic and for its own sake1In Toni Rønnow-Rasmussen & Michael J. Zimmerman (eds.), Recent work on intrinsic value, Springer. pp. 115. 2005.
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On Patients' Difficulties in Understanding Medical Risks and the Aims of Clinical Risk Communication : "They don't really understand"In Ulrik Kihlbom, Mats G. Hansson & Silke Schicktanz (eds.), Ethical, social and psychological impacts of genomic risk communication, Routledge. 2021.
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9Ethical, social and psychological impacts of genomic risk communication (edited book)Routledge. 2021.This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesising the results of a five-year interdisciplinary project, it explores the unsolved ethical and social que…Read more
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42An Ethics Framework for Making Resource Allocation Decisions Within Clinical Care: Responding to COVID-19Journal of Bioethical Inquiry 17 (4): 749-755. 2020.On March, 24, 2020, 818 cases of COVID-19 had been reported in New South Wales, Australia, and new cases were increasing at an exponential rate. In anticipation of resource constraints arising in clinical settings as a result of the COVID-19 pandemic, a working party of ten ethicists was convened at the University of Sydney to draft an ethics framework to support resource allocation decisions. The framework guides decision-makers using a question-and-answer format, in language that avoids philos…Read more
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23Autonomous decisions by couples in reproductive careBMC Medical Ethics 21 (1): 1-8. 2020.Background Preconception Expanded Carrier Screening is a genetic test offered to a general population or to couples who have no known risk of recessive and X-linked genetic diseases and are interested in becoming parents. A test may screen for carrier status of several autosomal recessive diseases at one go. Such a program has been piloted in the Netherlands and may become a reality in more European countries in the future. The ethical rationale for such tests is that they enhance reproductive a…Read more
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REGULAR ARTICLE Concern for privacy in relation to age during physical examination of children: an exploratory studyActa Pædiatrica 98 (8): 1349-1354. 2009.
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33Ethical Particularism - An Essay on Moral ReasonsAlmqvist & Wicksell Stockholm International. 2002.This is a PhD dissertation. Ethical particularism claims that any non-moral feature that in one situation is a reason why something is, for example, morally wrong, may in another situation be morally irrelevant or have an opposite moral valence. Ethical particularism entails, in other words, the non-existence of true or sound moral principles. Actions, persons, and situations acquire their moral features contextually in a way that escapes codification in principled terms. Particularism comes in …Read more
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31Beyond the Individual: Sources of Attitudes Towards Rule Violation in SportSport, Ethics and Philosophy 6 (4): 467-479. 2012.Today, certain rule-violating behaviours, such as doping, are considered to be an issue of concern for the sport community. This paper underlines and examines the affective dimensions involved in moral responses to, and attitudes towards, rule-violating behaviours in sport. The key role played by affective processes underlying individual-level moral judgement has already been implicated by recent developments in moral psychological theories, and by neurophysiological studies. However, we propose…Read more
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65Gene Doping and the Responsibility of BioethicistsSport, Ethics and Philosophy 5 (2). 2011.In this paper we will argue: (1) that scholars, regardless of their normative stand against or for genetic enhancement indeed have a moral/professional obligation to hold on to a realistic and up-to-date conception of genetic enhancement; (2) that there is an unwarranted hype surrounding the issue of genetic enhancement in general, and gene doping in particular; and (3) that this hype is, at least partly, created due to a simplistic and reductionist conception of genetics often adopted by bioeth…Read more
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30Guidance and justification in particularistic ethicsBioethics 14 (4). 2000.This paper argues that, contrary to a common line of criticism followed by scholars such as Helga Kuhse, a particularistic version of virtue ethics properly elaborated, can provide sound moral guidance and a satisfactory account for moral justification of our opinions regarding, for instance, health care practice. In the first part of the paper, three criteria for comparing normative theories with respect to action‐guiding power are outlined, and it is argued that the presented particularistic v…Read more
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49Ethics takes time, but not that longBMC Medical Ethics 8 (1): 6. 2007.Time and communication are important aspects of the medical consultation. Physician behavior in real-life pediatric consultations in relation to ethical practice, such as informed consent (provision of information, understanding), respect for integrity and patient autonomy (decision-making), has not been subjected to thorough empirical investigation. Such investigations are important tools in developing sound ethical praxis
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68Autonomy and Negatively Informed ConsentJournal of Medical Ethics 34 (3): 146-9. 2008.The requirement of informed consent (IC) to medical treatments is almost invariably justified with appeal to patient autonomy. Indeed, it is common to assume that there is a conceptual link between the principle of respect for autonomy and the requirement of IC, as in the influential work of Beauchamp and Childress. In this paper I will argue that the possible relation between the norm of respecting (or promoting) patient autonomy and IC is much weaker than conventionally conceived. One conseque…Read more