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L. Johnson

  •  Home
  •  Publications
    63
    • Most Recent
    • Most Downloaded
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  •  Events
    2
  •  News and Updates
    23

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  • All publications (63)
  •  82
    Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 20 (4): 102-103. 2020.
    Volume 20, Issue 4, May 2020, Page 102-103.
    Biomedical Ethics
  •  77
    Ethical Considerations for Unblinding a Participant’s Assignment to Interpret a Resolved Adverse Event
    with Benjamin S. Wilfond, Christian Morales, and Holly A. Taylor
    American Journal of Bioethics 18 (10): 66-67. 2018.
    Biomedical Ethics
  •  66
    Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 22 (4): 81-82. 2022.
    For many rare diseases, the availability of effective interventions is limited or non-existent. In this context, clinical research evaluating emerging interventions may be the only potentially “the...
    Biomedical Ethics
  •  57
    Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 20 (10): 90-91. 2020.
    Volume 20, Issue 10, October 2020, Page 90-91.
    Biomedical Ethics
  •  213
    A Randomized Trial of Rapamycin to Increase Longevity and Healthspan in Companion Animals: Navigating the Boundary Between Protections for Animal Research and Human Subjects Research
    with Holly A. Taylor, Christian Morales, and Benjamin S. Wilfond
    American Journal of Bioethics 18 (10): 58-59. 2018.
    Biomedical EthicsAnimal ExperimentationAnimal Ethics, MiscDomestic AnimalsApplied Ethics and Normati…Read more
    Biomedical EthicsAnimal ExperimentationAnimal Ethics, MiscDomestic AnimalsApplied Ethics and Normative Ethics
  •  62
    Mitigating Challenges in Dual-Role Consent: Honoring Patient Preferences to Discuss Research Participation With Someone They Know
    with Akshay Sharma
    American Journal of Bioethics 19 (4): 30-32. 2019.
    Biomedical Ethics
  •  83
    Germline Gene Editing for Sickle Cell Disease
    with Akshay Sharma and Nickhill Bhakta
    American Journal of Bioethics 20 (8): 46-49. 2020.
    Volume 20, Issue 8, August 2020, Page 46-49.
    Biomedical Ethics
  •  61
    Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk
    with Akshay Sharma
    American Journal of Bioethics 20 (4): 106-108. 2020.
    Volume 20, Issue 4, May 2020, Page 106-108.
    Biomedical Ethics
  •  66
    Beyond Mediation: A Toolkit Approach to Preventing and Managing Conflict with Patients and Families in Difficulty
    with Deena R. Levine, Katherine B. Steuer, Kimberly E. Sawyer, and Andrew Elliott
    American Journal of Bioethics 23 (1): 70-73. 2023.
    While we agree with Fiester and Yuan (2023) that ethicists should not execute behavioral agreements in their role as clinical consultants along with many of the authors’ criticisms of such contract...
    Biomedical Ethics
  •  65
    When Professional Meets Personal: How Should Research Staff Advertise on Social Media for Research Opportunities?
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 21 (10): 38-39. 2021.
    As part of the regulatory review process, both the Food and Drug Administration and Office for Human Research Protections (U.S. Department of Health and Human Services [HHS]...
    Biomedical Ethics
  •  55
    To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 22 (10): 87-88. 2022.
    Genomic sequencing is becoming more common both in clinical practice and as a routine aspect of much research. Over the last 15 years there has been ongoing discussion about the implications of gen...
  •  99
    Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 21 (4): 98-99. 2021.
    As medicine and science advance, new ethical questions emerge. Over time, deliberation and analysis result in a somewhat settled approach to a problem. Often the settled approach is based on group...
  •  50
    Informed Consent Conversations: Neither the Beginning nor the End
    with Barclay R. Rogers
    American Journal of Bioethics 21 (5): 76-78. 2021.
    Informed Consent: What Must Be Disclosed and What Must Be Understood seeks to challenge the “standard view” of consent. It seeks to do so by segregating the “disclosure function” from the “understa...
  •  99
    Clinically Significant? Depends on Whom You Ask
    with Christopher L. Church, Michael F. Walsh, and Justin N. Baker
    American Journal of Bioethics 12 (10): 18-20. 2012.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 18-20, October 2012
    Biomedical EthicsGenetic Testing
  •  87
    Should Research Participants Be Notified About Results of Currently Unknown but Potential Significance?
    with Jennifer Zabrowski and Benjamin S. Wilfond
    American Journal of Bioethics 19 (4): 73-74. 2019.
    Biomedical Ethics
  •  73
    Should Poor Social Support Be an Exclusion Criterion in Bone Marrow Transplantation?
    with Akshay Sharma
    American Journal of Bioethics 19 (11): 39-41. 2019.
    Volume 19, Issue 11, November 2019, Page 39-41.
    Biomedical Ethics
  •  88
    Recruiting Children for Clinical Trials: Lessons From Pediatric Oncology
    with Yoram Unguru
    American Journal of Bioethics 15 (11): 24-26. 2015.
    Medical Ethics
  •  91
    Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline Results
    with Belinda N. Mandrell, Chen Li, Zhaohua Lu, Jami Gattuso, Lynn W. Harrison, Motomi Mori, Annastasia A. Ouma, Michele Pritchard, Katianne M. Howard Sharp, and Kim E. Nichols
    AJOB Empirical Bioethics 13 (3): 152-165. 2022.
  •  26
    Minimally Conscious Assumptions and Dangerous Decision-Making Inferences
    with Chris Feudtner and Justin N. Baker
    American Journal of Bioethics Neuroscience 4 (1): 61-63. 2013.
    Biomedical Ethics
  •  63
    Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 20 (4): 111-113. 2020.
    Volume 20, Issue 4, May 2020, Page 111-113.
    Biomedical Ethics
  •  127
    Ethics Consultation in Pediatrics: Long-Term Experience From a Pediatric Oncology Center
    with Christopher L. Church, Monika Metzger, and Justin N. Baker
    American Journal of Bioethics 15 (5): 3-17. 2015.
    There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the…Read more
    There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the physician's fiduciary responsibility to the patient. Nonpatient consultations provided guidance in the development of institutional policies that would broadly affect patients and families. This is one of the few existing reviews of the content of pediatric EC and indicates that the distribution of ethical issues and reasons for moral distress are different than with adults. Pediatric EC often facilitates complex decision making among multiple stakeholders, and further prospective research is need..
    Biomedical Ethics
  •  73
    Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 20 (10): 82-83. 2020.
    Volume 20, Issue 10, October 2020, Page 82-83.
    Biomedical Ethics
  •  128
    A Pragmatic Trial of Suicide Risk Assessment and Ambulance Transport Decision Making Among Emergency Medical Services Providers: Implications for Patient Consent
    with Jennifer Zabrowski and Benjamin S. Wilfond
    American Journal of Bioethics 19 (10): 97-98. 2019.
    Volume 19, Issue 10, October 2019, Page 97-98.
    Biomedical Ethics
  •  61
    Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research
    with Devan M. Duenas and Benjamin S. Wilfond
    American Journal of Bioethics 20 (4): 8-10. 2020.
    The regulations dictating acceptable levels of risk in pediatric research were developed to protect pediatric research participants from unnecessary or excessive harms. These special protections we...
    Biomedical Ethics
  •  22
    Two religious critiques of liberal democracy: a comparison of the political theories of Mohandas Karamchand Gandhi and Franklin I. Gamwell
    Edwin Mellen Press. 2015.
    To underscore the moral crisis that plagues liberal democracy, the author seeks answers by drawing from both Western and Asian thought in this outstanding analysis in political ethics. Starting with Gamwell's theory, which is grounded on God and offers a common goal for political community and establishes a firm ground for morality and political ethics the author advances and reformulates Gamwell's theory, using the insights and resources provided by Gandhi bringing a global dimension to this or…Read more
    To underscore the moral crisis that plagues liberal democracy, the author seeks answers by drawing from both Western and Asian thought in this outstanding analysis in political ethics. Starting with Gamwell's theory, which is grounded on God and offers a common goal for political community and establishes a firm ground for morality and political ethics the author advances and reformulates Gamwell's theory, using the insights and resources provided by Gandhi bringing a global dimension to this original critique.
    Government and Democracy
  •  7
    Grace in the Midst of Judgment: Grappling with Genesis 1-11
    with Johnson Lim Teng Kok
    Walter de Gruyter. 2002.
    This book presents the development of a theological reading strategy in conversation with contemporary hermeneutical theories. Using that as a model, Gen 1-11 is read as a unified text refracted through the prism of textuality from a canonical approach.
  •  13
    Toward Defining the African Aesthetic
    with African Literature Association
    Passeggiata Press. 1982.
    African Philosophy: Aesthetics
  •  40
    Race Matters, Animal Matters: Fugitive Humanism in African America, 1840–1930
    Routledge. 2017.
    Race Matters, Animal Matters challenges one of the grand narratives of African American studies: that African Americans rejected racist associations of blackness and animality through a disassociation from animality. Analyzing canonical texts written by Frederick Douglass, Charles Chesnutt, Ida B. Wells, and James Weldon Johnson alongside slaughterhouse lithographs, hunting photography, and sheep "husbandry" manuals, Lindgren Johnson argues instead for a critical African American tradition that …Read more
    Race Matters, Animal Matters challenges one of the grand narratives of African American studies: that African Americans rejected racist associations of blackness and animality through a disassociation from animality. Analyzing canonical texts written by Frederick Douglass, Charles Chesnutt, Ida B. Wells, and James Weldon Johnson alongside slaughterhouse lithographs, hunting photography, and sheep "husbandry" manuals, Lindgren Johnson argues instead for a critical African American tradition that at pivotal moments reconsiders and recuperates discourses of animality weaponized against both African Americans and animals. Johnson articulates a theory of "fugitive humanism" in which these texts fl ee both white and human exceptionalism, even as they move within and seek out a humanist space. The focus, for example, is not on how African Americans shake off animal associations in demanding recognition of their humanity, but on how they hold fast to animality and animals in making such a move, revising "the human" itself as they go and undermining the binaries that helped to produce racial and animal injustices. Fugitive humanism reveals how an interspecies ethics develops in these African American responses to violent dehumanization. Illuminating those moments in which the African American canon exceeds human exceptionalism, Race Matters, Animal Matters ultimately shows how these black engagements with animals and animality are not subsequent to efforts for racial justice -- a mere extension of the abolitionist or antilynching movements-- but, to the contrary, are integral to those efforts. This black- authored temporality challenges widely accepted humanist approaches to the relationship between racial and animal justice as it anticipates and even critiques the valuable insights that animal studies and posthumanism have to offer in our current moment. aking such a move, revising "the human" itself as they go and undermining the binaries that helped to produce racial and animal injustices. Fugitive humanism reveals how an interspecies ethics develops in these African American responses to violent dehumanization. Illuminating those moments in which the African American canon exceeds human exceptionalism, Race Matters, Animal Matters ultimately shows how these black engagements with animals and animality are not subsequent to efforts for racial justice -- a mere extension of the abolitionist or antilynching movements-- but, to the contrary, are integral to those efforts. This black- authored temporality challenges widely accepted humanist approaches to the relationship between racial and animal justice as it anticipates and even critiques the valuable insights that animal studies and posthumanism have to offer in our current moment.
    Philosophy of RaceAfrican Philosophy: EpistemologyAfrican Philosophy: Ethics
  •  33
    Jesus of Nazareth: From the Baptism in the Jordan to the Transfiguration – By Joseph Ratzinger
    Modern Theology 24 (2): 318-320. 2008.
  •  76
    A call for complexity: integrated models to solve complex policy problems
    Mind and Society 14 (2): 259-271. 2015.
    This research calls for attention to complexity theory and the integration of complexity methodologies in policy research. A complexity approach in research practice requires a systems worldview and recognition of non-linearity, networks, self-organization, emergence, and feedback in policy. Simply, if a phenomenon is complex and can be explored from varied contexts and scales, the conceptual frame, and the methodical approach should be able to address the complexity. Complexity science has the …Read more
    This research calls for attention to complexity theory and the integration of complexity methodologies in policy research. A complexity approach in research practice requires a systems worldview and recognition of non-linearity, networks, self-organization, emergence, and feedback in policy. Simply, if a phenomenon is complex and can be explored from varied contexts and scales, the conceptual frame, and the methodical approach should be able to address the complexity. Complexity science has the capacity to account for complexity in varied contexts, on varied scales, and with an interrelated and interdependent environment. Further, if policy systems are at times simple, complicated, complex, and chaotic, then complexity mythologies combined with traditional qualitative and quantitative methods can bring to light the workings of the elusive black box. Complexity allows for triangulation of both linear and non-linear methodologies integrating qualitative, quantitative, network analysis, and agent-based models, as well as other methodologies. Complexity science is not the panacea to solve all policy problems with perfection. But if you do not acknowledge the complexity you will be missing out on the opportunity to shape patterns of sustainability, to effectively manage complex policy problems to someday solve them.
    Complexity
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