•  9
    Anonymous ethics consult requests: nameless or nebulous?
    with Meaghann Weaver, Abagail D. Cohen, Maria Susana Ciruzzi, and Ozan Gurcan
    Journal of Medical Ethics. forthcoming.
    The topic, timing and type of anonymous consults arriving to our ethics consultation service over the years compelled consideration of their purpose and function. The service-focused goal and role of ethics consultation is maximised through interactions with consult requesters for clarity and human connection. Ethics consultants should consider means to deidentify requests as part of ethics processes and remain transparent when this is not feasible. Authoritative guidance cautions against levera…Read more
  •  26
    From a Restrictive to Relational Approach: the Concept of Parental Utility in Germline Genomic Testing
    with Kim E. Nichols, Abagail D. Cohen, Ozan Gurcan, Belinda Mandrell, Ambria Williams, Katianne Sharp, and Meaghann Weaver
    American Journal of Bioethics 26 (5): 27-30. 2026.
    Volume 26, Issue 5, May 2026, Page 27-30.
  •  9
    US federal regulations for protection of human participants in research are outlined in the Common Rule (45 CFR 46 Subpart A1) while Subparts B, C, and D provide additional protection for certain ‘...
  •  11
    Principlistic Inclusion: The Relational Importance of Balancing Ethics Principles Among Pediatric Palliative Care Clinicians
    with Meaghann S. Weaver, Angela Snyder, Brittany A. Cowfer, Mary A. Delgado, Griffin Collins, Abagail D. Cohen, and Deena R. Levine
    American Journal of Bioethics 26 (3): 44-46. 2026.
    The insightful study by Scotch et al. highlighted that the comparative weight of the four key bioethics principles is culture, clinician, and context dependent (Scotch et al., 2026). Certain clinic...
  •  20
    Upstream from Urosepsis: Removing Race from Pediatric Urinary Tract Infection Algorithms
    with Meaghann S. Weaver, Ambria Williams, Abagail D. Cohen, and Lydia H. Pecker
    American Journal of Bioethics 26 (2): 117-120. 2026.
    Volume 26, Issue 2, February 2026, Page 117-120.
  •  12
    Preparing Adolescents and Equipping Parents for End-of-Life Care Preventing and Mitigating Moral Dilemmas (review)
    with Meaghann S. Weaver, Erica Kaye, Marta Salek, and Lori Wiener
    Journal of Bioethical Inquiry 1-3. forthcoming.
  •  46
    Yes, Parental Reasons Matter: Value-Laden Reactions Should Not Undermine the Utility of Knowing “Why”
    with Abagail D. Cohen and Yoram Unguru
    American Journal of Bioethics 25 (11): 44-46. 2025.
    Volume 25, Issue 11, November 2025, Page 44-46.
  •  48
    Delivery of Elexacaftor/Tezacaftor/Ivacaftor (ETI) Through Placenta and Then Breastmilk in Cystic Fibrosis: A Clinical Trial Risk-Benefit Analysis
    with Liza Dawson, Benjamin S. Wilfond, and Andrew Doffie Ray
    American Journal of Bioethics 25 (10): 97-99. 2025.
    Cystic fibrosis (CF) is an autosomal recessive disorder affecting more than 30,000 adults and children in the United States (Zaher et al. 2021). CF is caused by a malfunctioning cystic fibrosis tra...
  •  23
    Entrepreneurial Universities: A Multi-context Perspective
    with Oluwatimileyin Helen Adigun, Seun Oladele, Femi Oladele, and Toluwalase Fadun
    In Hakeem Adeniyi Ajonbadi, Susan Sisay & Seun Oladele (eds.), Exploring Entrepreneurship: Unpacking the Mosaic of Entrepreneurship across Africa, Springer Nature Switzerland. pp. 305-341. 2024.
    Entrepreneurial activitiesEntrepreneur/entrepreneurialactivities are considered the de facto for value creation in economies. Evolving knowledge shows that factors responsible for productive entrepreneurship in a region do not occur in isolation, leading to the entrepreneurial ecosystem concept that argues that productive entrepreneurship results from a systemic interaction among various interdependent actors, factors, and institutions. The university, as a knowledge centre, is considered a majo…Read more
  •  11
    The State of Sustainable Entrepreneurship in Nigeria
    with Oluwatimileyin Helen Adigun and Seun Oladele
    In Hakeem Adeniyi Ajonbadi, Susan Sisay & Seun Oladele (eds.), Exploring Entrepreneurship: Unpacking the Mosaic of Entrepreneurship across Africa, Springer Nature Switzerland. pp. 373-402. 2024.
    Sustainable entrepreneurshipSustainable entrepreneurship has emerged as a global key driver of economic growthEconomic growth, social development and environmental sustainabilityEnvironmental sustainability. It has transformed entrepreneurship from contributing to environmental and social issues to being the solution to these issues. In Nigeria, where environmental and socio-economic challenges are prevalent, sustainable entrepreneurship holds great potential for addressing these challenges whil…Read more
  •  14
    Conjoined Consent: Informed Consent When Donor and Recipient Are Both Research Participants
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 21 (4): 106-107. 2021.
  •  1429
    We submit this brief in support of the Nonhuman Rights Project’s efforts to secure habeas corpus relief for the elephant named Happy. The Supreme Court, Bronx County, declined to grant habeas corpus relief and order Happy’s transfer to an elephant sanctuary, relying, in part, on previous decisions that denied habeas relief for the NhRP’s chimpanzee clients, Kiko and Tommy. Those decisions use incompatible conceptions of ‘person’ which, when properly understood, are either philosophically inadequ…Read more
  •  47
    Allocation of Gene Therapy for Rare Diseases: FDA Approved Therapy or Clinical Trial for Patients with Sickle Cell Disease?
    with Aimee C. Talleur and Akshay Sharma
    American Journal of Bioethics 25 (4): 154-156. 2025.
    As outlined in the case (Johnson et al. 2025) sickle cell disease (SCD) is a serious, monogenic disorder which significantly reduces both life expectancy and quality-adjusted life expectancy in aff...
  •  65
    Moral Distress and Moral Stress Among Nurses Facing Challenges in a Health Care System Under Pressure
    with Belinda Mandrell, Jacklyn Boggs, Jami Gattuso, Mary Caples, Kimberly E. Sawyer, and Arshia Madni
    American Journal of Bioethics 24 (12): 48-51. 2024.
    To understand the long-term impact of the COVID-19 pandemic on healthcare workers, it is crucial to examine the complex interplay between moral distress, moral injury, and moral stress. Buchbinder...
  •  52
    Disclosing Interim Results to Parents Offered Enrollment in a Fetal Intervention Trial
    with Andrew D. Ray, Liza Dawson, and Benjamin S. Wilfond
    American Journal of Bioethics 24 (10): 113-114. 2024.
    Volume 24, Issue 10, October 2024, Page 113-114.
  •  203
    In the early 1960s, Betty Friedan made a plea for women to grow up, to become - in her terms - fully developed persons. In this book the author looks at the 1950s and early 60s in Australia as a period in which the girlhood and growing up as young women was being transformed in major ways.
  •  109
    Captive
    Journal of Animal Ethics 10 (1): 84-86. 2020.
  •  58
    To Swab or Not to Swab: Waiver of Consent to Collect Perianal Specimens from Incapacitated Patients With Severe Burn Injury
    with Liza Dawson, Andrew D. Ray, and Benjamin S. Wilfond
    American Journal of Bioethics 24 (4): 108-109. 2024.
    This case is about a study of burn patients that included a request to the IRB for a waiver of consent for perianal specimen collection–a request which ultimately was not approved by a reviewing IR...
  •  31
    Challenging cases in clinical research ethics (edited book)
    with Benjamin Wilfond, Devan M. Duenas, and Holly Taylor
    CRC Press, Taylor & Francis Group. 2024.
    Clinical research ethics consultation has emerged in the last 15 years as a service to those involved in the conduct of clinical research who face challenging issues for which more than one course of action may be justified. To respond to a growing field and need for opportunities to share knowledge and experience, the Clinical Research Ethics Consultation Collaborative, established in 2014, holds monthly webinars for its 90 members to present their most challenging cases to each other and engag…Read more
  •  72
    Researcher Obligations to Participants in Novel COVID-19 Vaccine Research
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 23 (10): 119-120. 2023.
    The rapid development of COVID-19 vaccines in 2020 involved an unprecedented clinical research initiative. The case here involves a Phase I clinical trial of “second-generation” COVID-19 vaccines d...
  •  23
    As humanity grapples with its significant global footprint in this era, there is a growing fascination with delving into the experiences and viewpoints of other animal species. This juncture offers an opportune moment to delve into the aesthetics of non-human animals by using diverse interdisciplinary methods and viewpoints. Insights of feminist aesthetics demonstrate how traditional understanding of aesthetics and aesthetic experience are heavily influenced by cultural assumptions about gender.…Read more
  •  228
    The Religion of Ethical Veganism
    Journal of Animal Ethics 5 (1). 2015.
    A survey was administered during fall 2013 to 163 self-identified adult ethical vegans and/or ethical vegetarians in the United States to determine whether the respondents+ beliefs meet the definition of religion according to U.S. federal law. The data demonstrate that a majority of the surveyed group possesses beliefs concordant with the definition of "religion" according to federal statutes, federal judicial tests, and regulatory law. Since religion is a protected characteristic in U.S. law, a…Read more
  •  160
    Do animals have an interest in life?
    Australasian Journal of Philosophy 61 (2). 1983.
    This Article does not have an abstract
  •  97
    Beyond Parenting: The Responsibility of Multidisciplinary Health Care Providers in Early Intervention Policy Guidance
    with Kristin Canavera and Jennifer Harman
    American Journal of Bioethics 18 (11): 58-60. 2018.
  •  185
    Future Generations and Contemporary Ethics
    Environmental Values 12 (4). 2003.
    Future generations do not exist, and are not determinate in their make-up. The moral significance of future generations cannot be accounted for on the basis of a purely individualistic ethic. Yet future generations are morally significant. The Person-Affecting Principle, that (roughly) only acts which are likely to affect particular individuals are morally significant, must be augmented in such a way as to take into account the moral significance of Homo sapiens, a holistic entity which certainl…Read more
  •  79
    The Work of ASBH’s Clinical Ethics Consultation Affairs Committee: Development Processes Behind Our Educational Materials
    with George E. Hardart, Katherine Wasson, Ellen M. Robinson, Aviva Katz, Deborah L. Kasman, Barrie J. Huberman, Anne Cordes, Barbara L. Chanko, Jane Jankowski, and Courtenay R. Bruce
    Journal of Clinical Ethics 29 (2): 150-157. 2018.
    The authors of this article are previous or current members of the Clinical Ethics Consultation Affairs (CECA) Committee, a standing committee of the American Society for Bioethics and Humanities (ASBH). The committee is composed of seasoned healthcare ethics consultants (HCECs), and it is charged with developing and disseminating education materials for HCECs and ethics committees. The purpose of this article is to describe the educational research and development processes behind our teaching …Read more
  •  119
    The Limitations of “Boilerplate” Language in Informed Consent: Single IRB Review of Multisite Genetic Research in Military Personnel
    with Benjamin S. Wilfond and Jennifer Zabrowski
    American Journal of Bioethics 19 (4): 81-82. 2019.
  •  48
    Supporting Community-Academic Research Partnerships: Reflections from the Ground
    with Benjamin S. Wilfond and Devan M. Duenas
    American Journal of Bioethics 21 (10): 44-45. 2021.
    Currently, there is consensus that community engagement and partnerships are essential to inclusive patient-centered clinical research. Yet there is variation about what it means to do this well an...