Amanda Quinn

Background A multicenter study of pectus excavatum was described previously. This report presents our final results. Study Design Patients treated surgically at 11 centers were followed prospectively. Each underwent a preoperative evaluation with CT scan, pulmonary function tests, and body image survey. Data were collected about associated conditions, complications, and perioperative pain. One year after treatment, patients underwent repeat chest CT scan, pulmonary function tests, and body image survey. A subset of 50 underwent exercise pulmonary function testing. Results Of 327 patients, 284 underwent Nuss procedure and 43 underwent open procedure without mortality. Of 182 patients with complete follow-up, 18% had late complications, similarly distributed, including substernal bar displacement in 7% and wound infection in 2%. Mean initial CT scan index of 4.4 improved to 3.0 post operation. Computed tomography index improved at the deepest point and also upper and middle sternum. Pulmonary function tests improved (forced vital capacity from 88% to 93%, forced expiratory volume in 1 second from 87% to 90%, and total lung capacity from 94% to 100% of predicted (p 3.2. Operative correction significantly reduces CT index and markedly improves the shape of the entire chest, and can be performed safely in a variety of centers. © 2013 by the American College of Surgeons.

Cette étude de cas aborde les défis de la prise de décision en fin de vie dans la pratique, en se concentrant sur l’équilibre délicat entre le paternalisme médical, la prise de décision partagée et les droits des décideurs de substitution. La famille a d’abord du mal à saisir la gravité de l’état de santé de l’être cher, mais un moment charnière lors de la réunion sur les objectifs de soins apporte une clarté soudaine. Ce cas explore la pertinence et les implications de la pratique du non-dissentiment éclairé. Cette analyse suggère que cette pratique est inappropriée à moins qu’il n’y ait des preuves irréfutables de paralysie de la décision. Des stratégies pratiques sont proposées pour faciliter l’accompagnement de la mort dans la compassion, tout en tenant compte des contraintes de l’urgence clinique.