Ana Marques Fortes Lustosa: Publications

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Universidade Federal Do Piauí

Programa De Pós-Graduação Em Educação

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91

Une recherche citoyenne sur l’article 12 de la convention de l’ONU sur les droits des personnes handicapées
with Benoît Eyraud, Arnaud Béal, Nacerdine Bezghiche, Stef Bonnot-Briey, Chantal Bruno, Erick Cattez, Jean-Philippe Cobbaut, Sylvie Daniel, Guillaume François, Julien Grard, Gael Klein, Michel Lalemant, Céline Lefebvre, Valérie Lemard, Jacques Lequien, Céline Letailleur, Claudine Levray, Marc Losson, Bernard Meile, Nicolas Ordener, Mouna Romdhani, Nicolas Saenen, Sébastien Saetta, Iuliia Taran, and Florie Vuattouxy

Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 2 (15-2): 165-176. 2021.

In this article, we present findings from a participatory action research program in France on the exercise of human rights and supported and substitute decision-making, inspired by the United Nations Convention on the Rights of Persons with Disabilities (“CRPD”). Bringing together persons with the lived experience of disability, academics, and health and social care and support professionals, the project used the method of “experience-based construction of public problem” to transform experienc…Read more
In this article, we present findings from a participatory action research program in France on the exercise of human rights and supported and substitute decision-making, inspired by the United Nations Convention on the Rights of Persons with Disabilities (“CRPD”). Bringing together persons with the lived experience of disability, academics, and health and social care and support professionals, the project used the method of “experience-based construction of public problem” to transform experience into collective expertise. This enabled the exploration of support that persons in vulnerable situations, whose capacity to exercise their human rights has weakened, need to make decisions in their lives and participate meaningfully in public debate. The relationship between the awareness of rights and exercise of rights is discussed. We argue for the need to balance out the positions of different contributors in participatory action research, in a reasoned manner, by recognizing the scientific and citizen-based participation of all partners.