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2Was bedeuten Sterbewünsche?In Claudia Bozzaro, Gesine Richter & Christoph Rehmann-Sutter (eds.), Ethik des assistierten Suizids: Autonomien, Vulnerabilitäten, Ambivalenzen, Transcript Verlag. pp. 289-302. 2024.
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5Nicht lebensmüde, aber lebenssattIn Claudia Bozzaro, Gesine Richter & Christoph Rehmann-Sutter (eds.), Ethik des assistierten Suizids: Autonomien, Vulnerabilitäten, Ambivalenzen, Transcript Verlag. pp. 259-262. 2024.
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3Einer, der ihnen die Finsternis bringtIn Claudia Bozzaro, Gesine Richter & Christoph Rehmann-Sutter (eds.), Ethik des assistierten Suizids: Autonomien, Vulnerabilitäten, Ambivalenzen, Transcript Verlag. pp. 127-130. 2024.
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19Ethik des assistierten Suizids: Autonomien, Vulnerabilitäten, Ambivalenzen (edited book)transcript Verlag. 2024.Über das eigene Lebensende autonom bestimmen zu können, ist der Wunsch vieler Menschen. Höchste Gerichte in Deutschland und Österreich erkennen das Recht auf assistierten Suizid als eine Form des selbstbestimmten Sterbens an. In der Schweiz tragen Sterbehilfeorganisationen zu einer breiteren Akzeptanz bei. Wie aber ist die Suizidhilfe ethisch zu rechtfertigen? Und wie soll die emergente Praxis geregelt und gelebt werden? Die Beiträger*innen widmen sich diesen Fragen aus interdisziplinärer Perspe…Read more
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312Naturerkenntnis Und Natursein (edited book)Suhrkamp. 1998.Indem dieser Band sich auf das Verhältnis von Naturerkennen und Natursein konzentriert, thematisiert er einen wesentlichen Ausschnitt aus dem weiten Spektrum von Böhmes philosophischer Arbeit. Um die Naturthematik möglichst breit zu entfalten und für Querverbindungen offenzuhalten, ist der vorliegende Band in drei Abschnitte gegliedert. Im ersten Abschnitt stehen Charakter und Reichweite der wissenschaftlichen Erkenntnis von Natur im Mittelpunkt. Der zweite Teil des Bandes stellt alternative Per…Read more
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139The Well- and Unwell-Being of a ChildTopoi 32 (2): 197-205. 2013.The concept of the ‘well-being of the child’ (like the ‘child’s welfare’ and ‘best interests of the child’) has remained underdetermined in legal and ethical texts on the needs and rights of children. As a hypothetical construct that draws attention to the child’s long-term welfare, the well-being of the child is a broader concept than autonomy and happiness. This paper clarifies some conceptual issues of the well-being of the child from a philosophical point of view. The main question is how we…Read more
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7Is it a child’s duty to donate blood stem cells for its sick sibling?Ethik in der Medizin 25 (2): 89-102. 2013.Die allogene Transplantation von Blutstammzellen aus dem Körper von Kindern, die der Spende nicht selbst zustimmen können, in den Körper eines kranken Geschwisterkindes wirft schwierige ethische Fragen auf. Wie kann ein risikobehafteter, fremdnütziger medizinischer Eingriff ethisch gerechtfertigt werden? In dieser Arbeit werden Argumente kritisch untersucht, nach denen das Spenderkind eine Pflicht habe, bei der Transplantation mitzumachen. Die Idee der Pflicht ist nachvollziehbar aus der Perspek…Read more
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38Is it a child’s duty to donate blood stem cells for its sick sibling?Ethik in der Medizin 25 (2): 89-102. 2013.Die allogene Transplantation von Blutstammzellen aus dem Körper von Kindern, die der Spende nicht selbst zustimmen können, in den Körper eines kranken Geschwisterkindes wirft schwierige ethische Fragen auf. Wie kann ein risikobehafteter, fremdnütziger medizinischer Eingriff ethisch gerechtfertigt werden? In dieser Arbeit werden Argumente kritisch untersucht, nach denen das Spenderkind eine Pflicht habe, bei der Transplantation mitzumachen. Die Idee der Pflicht ist nachvollziehbar aus der Perspek…Read more
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139. “Something is Not Quite Right” – Two Cinematic Narratives about Decision-Making after Prenatal DiagnosisIn Christina Schües (ed.), Genetic Responsibility in Germany and Israel: Practices of Prenatal Diagnosis, Transcript Verlag. pp. 253-262. 2022.
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41The decision of the German Federal Joint Committee to cover NIPT in mandatory health insurance. An ethical analysisEthik in der Medizin 32 (4): 385-403. 2020.Definition of the problemFrom an ethical point of view we analyse the ruling of the German Federal Joint Committee (Gemeinsamer Bundesausschuss, G‑BA) of September 2019 to revise the guidelines about the coverage of noninvasive prenatal tests (NIPT) by mandatory health insurance, in order to include them under specified conditions. The decision contains four essential elements: a definition of the aim of NIPT testing (to avoid invasive testing), a criterion of access (test must be “necessary” fo…Read more
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23Saving or Subordinating Life? Popular Views in Israel and Germany of Donor Siblings Created through PGDJournal of Medical Humanities 38 (2): 191-207. 2017.To explore how cultural beliefs are reflected in different popular views of pre-implantation genetic diagnosis for human leukocyte antigen match (popularly known as “savior siblings”), we compare the reception and interpretations, in Germany and Israel, of the novel/film My Sister’s Keeper. Qualitative analysis of reviews, commentaries and posts is used to classify and compare normative assessments of PGD for HLA and how they reproduce, negotiate or oppose the national policy and its underlying …Read more
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26Comparing Germany and Israel regarding debates on policy-making at the beginning of life: PGD, NIPT and their paths of routinizationEthik in der Medizin 34 (1): 65-80. 2021.The routinization of prenatal diagnosis is the source of bioethical and policy debates regarding choice, autonomy, access, and protection. To understand these debates in the context of cultural diversity and moral pluralism, we compare Israel and Germany, focusing on two recent repro-genetic “hot spots” of such policy-making at the beginning of life: pre-implantation genetic diagnosis and non-invasive prenatal genetic testing, two cutting-edge repro-genetic technologies that are regulated and vi…Read more
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1512. Comparison through ConversationIn Christina Schües (ed.), Genetic Responsibility in Germany and Israel: Practices of Prenatal Diagnosis, Transcript Verlag. pp. 347-372. 2022.
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21Genetic Transparency? Ethical and Social Implications of Next Generation Human Genomics and Genetic Medicine (edited book)Brill | Rodopi. 2016._Genetic Transparency?_ tackles the question of who has, or should have access to personal genomic information. Genomics experts and scholars from the humanities and social sciences discuss the changes in interpersonal relationships, human self-understandings, ethics, law, and the health systems.
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21Non-invasive prenatal testing (NIPT): is routinization problematic?BMC Medical Ethics 24 (1): 1-11. 2023.BackgroundThe introduction and wide application of non-invasive prenatal testing (NIPT) has triggered further evolution of routines in the practice of prenatal diagnosis. ‘Routinization’ of prenatal diagnosis however has been associated with hampered informed choice and eugenic attitudes or outcomes. It is viewed, at least in some countries, with great suspicion in both bioethics and public discourse. However, it is a heterogeneous phenomenon that needs to be scrutinized in the wider context of …Read more
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Suicide centres : a reasonable requirement or a step too far?In Simon Woods & Lynn Hagger (eds.), A Good Death?: Law and Ethics in Practice, Routledge. 2013.
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6Decision-making about non-invasive prenatal testing: women’s moral reasoning in the absence of a risk of miscarriage in GermanyNew Genetics and Society 40 (2): 199-215. 2021.This paper examines women’s experiences with decision-making about non-invasive prenatal testing (NIPT). Such tests offer knowledge about chromosomal disorders early in pregnancy, without the risk of miscarriage associated with invasive procedures such as amniocentesis. Based on qualitative interviews with women in Germany who used, or declined, NIPT, we show how some women, who would not consider amniocentesis due to the risk of miscarriage, welcome the knowledge provided by, and the additional…Read more
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8Verbesserte Körper -- gutes Leben?: Bioethik, Enhancement und die Disability Studies (edited book)Lang. 2012.Enhancement - Behinderung - gutes Leben. Der Band verknupft diese drei Themen und entwickelt einen breiten Zugang zur Debatte um die biotechnologischen Moglichkeiten zur Verbesserung des menschlichen Korpers. Die Beitrage gehen von der Arbeitshypothese aus, dass die Erfahrungen von Menschen mit Behinderungen wichtig sind, um ethische Fragen, die sich bei Enhancement-Projekten stellen, konkreter - und so besser - zu verstehen. Eine zweite Hypothese ist, dass die Sprache der Rechte, Pflichten und …Read more
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23Self‐perceived burden to others as a moral emotion in wishes to die. A conceptual analysisBioethics 33 (4): 439-447. 2019.Patients at the end of their life who express a wish to die sometimes explain their wish as the desire not to be a burden to others. This feeling needs to be investigated as an emotion with an intrinsically dialogical structure. Using a phenomenological approach, two key meanings of the feeling of being a burden to others as a reason for a wish to die are identified. First, it is an existential suffering insofar as it contains the perception of a plight so desperate that it can only be relieved …Read more
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2Sterben als Teil des Lebens und als Handlungsraum. Ethische ÜberlegungenIn Martin G. Weiss & Hajo Greif (eds.), Ethics, society, politics: proceedings of the 35th International Ludwig Wittgenstein Symposium, Kirchberg am Wechsel, Austria, 2012, De Gruyter Ontos. pp. 483-518. 2013.
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112 Poiesis and Praxis: Two Modes of Understanding DevelopmentIn Eva M. Neumann-Held, Christoph Rehmann-Sutter, Barbara Herrnstein Smith & E. Roy Weintraub (eds.), Genes in Development: Re-reading the Molecular Paradigm, Duke University Press. pp. 313-334. 2006.
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4IntroductionIn Eva M. Neumann-Held, Christoph Rehmann-Sutter, Barbara Herrnstein Smith & E. Roy Weintraub (eds.), Genes in Development: Re-reading the Molecular Paradigm, Duke University Press. pp. 1-12. 2006.
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19Genes in Development: Re-reading the Molecular Paradigm (edited book)Duke University Press. 2006.In light of scientific advances such as genomics, predictive diagnostics, genetically engineered agriculture, nuclear transfer cloning, and the manipulation of stem cells, the idea that genes carry predetermined molecular programs or blueprints is pervasive. Yet new scientific discoveries—such as rna transcripts of single genes that can lead to the production of different compounds from the same pieces of dna—challenge the concept of the gene alone as the dominant factor in biological developmen…Read more
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Looking at human enhancement through the disability lensIn Miriam Eilers, Katrin Grüber & Christoph Rehmann-Sutter (eds.), The human enhancement debate and disability: new bodies for a better life, Palgrave-macmillan. 2014.
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15The human enhancement debate and disability: new bodies for a better life (edited book)Palgrave-Macmillan. 2014.Improving human characteristics goes beyond compensating for an impairment. This book explores the rich and complex relationship between enhancement and impairment, showing that the study of disability offers new ways of thinking about the social and ethical implications of improving the human condition.
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20Boris Fehse et al. (Hrsg) (2021) Fünfter Gentechnologiebericht. Sachstand und Perspektiven für Forschung und AnwendungEthik in der Medizin 35 (1): 149-152. 2023.
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7The patient's wish to die: research, ethics, and palliative care (edited book)Oxford University Press. 2015.Wish to die statements are becoming a frequent phenomenon in terminally ill patients. Those confronted by these statments need to understand the complexity of such wishes, so they can respond competently and compassionately to the requests. If misunderstood, the statements can be taken at face-value and the practitioner may not recognise that a patient is in fact experiencing ambivalent feelings at the end of life, or they may misinterpret the expressed wish to die as a sign of clinical depressi…Read more