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9Clinical ethics, its nature, and the role of the nurse as clinical ethicistNursing Philosophy: An International Journal for Healthcare Professionals 4 (3): 177-178. 2003.
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Feminist ethicsIn Verena Tschudin (ed.), Approaches to ethics: nursing beyond boundaries, Butterworth-heinemann. pp. 33--43. 2003.
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6Physicians’ Perspectives on Adolescent and Young Adult Advance Care Planning: The Fallacy of Informed Decision MakingJournal of Clinical Ethics 30 (2): 131-142. 2019.Advance care planning (ACP) is a process that seeks to elicit patients’ goals, values, and preferences for future medical care. While most commonly employed in adult patients, pediatric ACP is becoming a standard of practice for adolescent and young adult patients with potentially life-limiting illnesses. The majority of research has focused on patients and their families; little attention has been paid to the perspectives of healthcare providers (HCPs) regarding their perspectives on the proces…Read more
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6Holding Ashley (X): Bestowing Identity Through Caregiving in Profound Intellectual DisabilityJournal of Clinical Ethics 28 (3): 189-196. 2017.The controversy over the so-called Ashley Treatment (AT), a series of medical procedures that inhibited both growth and sexual development in the body of a profoundly intellectually impaired girl, usually centers either on Ashley’s rights, including a right to an intact, unaltered body, or on Ashley’s parents’ rights to make decisions for her. The claim made by her parents, that the procedure would improve their ability to care for her, is often dismissed as inappropriate or, at best, irrelevant…Read more
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2“Buying-In” and “Cashing-Out”: Patients’ Experience and the Refusal of Life-Prolonging TreatmentJournal of Clinical Ethics 29 (1): 15-19. 2018.Surgical “buy-in” is an “informal contract between surgeon and patient in which the patient not only consents to the operative procedure but commits to the post-operative surgical care anticipated by the surgeon.”1 Surgeons routinely assume that patients wish to undergo treatment for operative complications so that the overall treatment course is “successful,” as in the treatment of a post-operative infection. This article examines occasions when patients buy-in to a treatment course that carrie…Read more
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7Moral Agency, Moral Imagination, and Moral Community: Antidotes to Moral DistressJournal of Clinical Ethics 27 (3): 201-213. 2016.Moral distress has been covered extensively in the nursing literature and increasingly in the literature of other health professions. Cases that cause nurses’ moral distress that are mentioned most frequently are those concerned with prolonging the dying process. Given the standard of aggressive treatment that is typical in intensive care units (ICUs), much of the existing moral distress research focuses on the experiences of critical care nurses. However, moral distress does not automatically o…Read more
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27Problems with the electronic health recordNursing Philosophy 17 (1): 49-58. 2016.One of the most significant changes in modern healthcare delivery has been the evolution of the paper record to the electronic health record (EHR). In this paper we argue that the primary change has been a shift in the focus of documentation from monitoring individual patient progress to recording data pertinent to Institutional Priorities (IPs). The specific IPs to which we refer include: finance/reimbursement; risk management/legal considerations; quality improvement/safety initiatives; meetin…Read more
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20The Two-Patient Framework for Research During Pregnancy: A Critique and a Better Way ForwardAmerican Journal of Bioethics 11 (5): 66-68. 2011.
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22Nurses and Physicians on Nutritional Support: A ComparisonJournal of Medicine and Philosophy 16 (3): 259-283. 1991.During the last decade, several court cases have focused attention on the moral and legal aspects of withholding or withdrawing food and fluids from certain patients. The courts have not been unanimous in their judgments on these matters. In attempting to explore this issue, this article reviews both the nursing and medical literature on the withdrawing and withholding of food and fluids with particular attention to empirical studies. Several themes which emerge from the literature are used to e…Read more
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3Book Review: Ethics and evidence-based medicine: fallibility and responsibility in clinical science (review)Nursing Ethics 10 (5): 569-569. 2003.
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62Moral Distress Reexamined: A Feminist Interpretation of Nurses' Identities, Relationships, and Responsibilites (review)Journal of Bioethical Inquiry 10 (3): 337-345. 2013.Moral distress has been written about extensively in nursing and other fields. Often, however, it has not been used with much theoretical depth. This paper focuses on theorizing moral distress using feminist ethics, particularly the work of Margaret Urban Walker and Hilde Lindemann. Incorporating empirical findings, we argue that moral distress is the response to constraints experienced by nurses to their moral identities, responsibilities, and relationships. We recommend that health professiona…Read more
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36Whose morality is it anyway? Thoughts on the work of Margaret Urban WalkerNursing Philosophy 4 (3): 259-262. 2003.
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246How Clinical Trials Really Work Rethinking Research EthicsKennedy Institute of Ethics Journal 21 (2): 121-139. 2011.Clinical trials are a central mechanism in the production of medical knowledge. They are the gold standard by which such knowledge is evaluated. They are widespread both in the United States and internationally; a National Institute of Health database reports over 106,000 active industry and government-sponsored trials (National Institutes of Health n.d.). They are an engine of the economy. The work of trials is complex; multiple people with diverse interests working across multiple settings sim…Read more
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7Book Review: Life and death: grappling with the moral dilemmas of our time (review)Nursing Ethics 4 (5): 426-427. 1997.
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13Launch of the International Philosophy of Nursing Society (IPONS)Nursing Philosophy 5 (1): 91-92. 2004.
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32Perils of proximity: a spatiotemporal analysis of moral distress and moral ambiguityNursing Inquiry 11 (4): 218-225. 2004.