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117The Religion of Ethical VeganismJournal of Animal Ethics 5 (1). 2015.A survey was administered during fall 2013 to 163 self-identified adult ethical vegans and/or ethical vegetarians in the United States to determine whether the respondents+ beliefs meet the definition of religion according to U.S. federal law. The data demonstrate that a majority of the surveyed group possesses beliefs concordant with the definition of "religion" according to federal statutes, federal judicial tests, and regulatory law. Since religion is a protected characteristic in U.S. law, a…Read more
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53Future Generations and Contemporary EthicsEnvironmental Values 12 (4). 2003.Future generations do not exist, and are not determinate in their make-up. The moral significance of future generations cannot be accounted for on the basis of a purely individualistic ethic. Yet future generations are morally significant. The Person-Affecting Principle, that (roughly) only acts which are likely to affect particular individuals are morally significant, must be augmented in such a way as to take into account the moral significance of Homo sapiens, a holistic entity which certainl…Read more
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44Ethics Consultation in Pediatrics: Long-Term Experience From a Pediatric Oncology CenterAmerican Journal of Bioethics 15 (5): 3-17. 2015.There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the…Read more
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38Callista Roy: An Adaptation ModelSAGE Publications. 1991.This volume provides an easily understood presentation of Roy's Adaptation Model of nursing theory which views the person as a biopsychosocial being in constant interaction with the changing environment. Roy believes nursing is needed when unusual stressors or weakened coping mechanisms make the person's usual attempts to cope ineffective. The goal of nursing is thus to promote the adaptation of the patient, leading to a higher level of wellness. Roy's model has been a guiding influence on numer…Read more
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34A Randomized Trial of Rapamycin to Increase Longevity and Healthspan in Companion Animals: Navigating the Boundary Between Protections for Animal Research and Human Subjects ResearchAmerican Journal of Bioethics 18 (10): 58-59. 2018.
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32A call for complexity: integrated models to solve complex policy problemsMind and Society 14 (2): 259-271. 2015.This research calls for attention to complexity theory and the integration of complexity methodologies in policy research. A complexity approach in research practice requires a systems worldview and recognition of non-linearity, networks, self-organization, emergence, and feedback in policy. Simply, if a phenomenon is complex and can be explored from varied contexts and scales, the conceptual frame, and the methodical approach should be able to address the complexity. Complexity science has the …Read more
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32Do animals have an interest in life?Australasian Journal of Philosophy 61 (2). 1983.This Article does not have an abstract
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31Clinically Significant? Depends on Whom You AskAmerican Journal of Bioethics 12 (10): 18-20. 2012.The American Journal of Bioethics, Volume 12, Issue 10, Page 18-20, October 2012
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29Recruiting Children for Clinical Trials: Lessons From Pediatric OncologyAmerican Journal of Bioethics 15 (11): 24-26. 2015.
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29The Ethics of Uncertainty: Entangled Ethical and Epistemic Risks in Disorders of ConsciousnessOxford University Press. 2021.Disorders of Consciousness (DoCs) raise difficult and complex questions about the value of life for persons with impaired consciousness, the rights of persons unable to make medical decisions, and our social, medical, and ethical obligations to patients whose personhood has frequently been challenged and neglected. Recent neuroscientific discoveries have led to enhanced understanding of the heterogeneity of these disorders, and focused renewed attention on the medical and ethical problem of misd…Read more
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25A Pragmatic Trial of Suicide Risk Assessment and Ambulance Transport Decision Making Among Emergency Medical Services Providers: Implications for Patient ConsentAmerican Journal of Bioethics 19 (10): 97-98. 2019.Volume 19, Issue 10, October 2019, Page 97-98.
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21Beyond Mediation: A Toolkit Approach to Preventing and Managing Conflict with Patients and Families in DifficultyAmerican Journal of Bioethics 23 (1): 70-73. 2023.While we agree with Fiester and Yuan (2023) that ethicists should not execute behavioral agreements in their role as clinical consultants along with many of the authors’ criticisms of such contract...
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21Should Research Participants Be Notified About Results of Currently Unknown but Potential Significance?American Journal of Bioethics 19 (4): 73-74. 2019.
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20Ethical Considerations for Unblinding a Participant’s Assignment to Interpret a Resolved Adverse EventAmerican Journal of Bioethics 18 (10): 66-67. 2018.
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20Germline Gene Editing for Sickle Cell DiseaseAmerican Journal of Bioethics 20 (8): 46-49. 2020.Volume 20, Issue 8, August 2020, Page 46-49.
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18Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?American Journal of Bioethics 20 (4): 111-113. 2020.Volume 20, Issue 4, May 2020, Page 111-113.
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18Click Here to Complete This Survey: Online Research, Adolescents, and Parental ConsentAmerican Journal of Bioethics 20 (10): 82-83. 2020.Volume 20, Issue 10, October 2020, Page 82-83.
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18Beyond Parenting: The Responsibility of Multidisciplinary Health Care Providers in Early Intervention Policy GuidanceAmerican Journal of Bioethics 18 (11): 58-60. 2018.
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17Mitigating Challenges in Dual-Role Consent: Honoring Patient Preferences to Discuss Research Participation With Someone They KnowAmerican Journal of Bioethics 19 (4): 30-32. 2019.
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16The Limitations of “Boilerplate” Language in Informed Consent: Single IRB Review of Multisite Genetic Research in Military PersonnelAmerican Journal of Bioethics 19 (4): 81-82. 2019.
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16Informed Consent Conversations: Neither the Beginning nor the EndAmerican Journal of Bioethics 21 (5): 76-78. 2021.Informed Consent: What Must Be Disclosed and What Must Be Understood seeks to challenge the “standard view” of consent. It seeks to do so by segregating the “disclosure function” from the “understa...
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16The Work of ASBH’s Clinical Ethics Consultation Affairs Committee: Development Processes Behind Our Educational MaterialsJournal of Clinical Ethics 29 (2): 150-157. 2018.The authors of this article are previous or current members of the Clinical Ethics Consultation Affairs (CECA) Committee, a standing committee of the American Society for Bioethics and Humanities (ASBH). The committee is composed of seasoned healthcare ethics consultants (HCECs), and it is charged with developing and disseminating education materials for HCECs and ethics committees. The purpose of this article is to describe the educational research and development processes behind our teaching …Read more
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15The Need for Improved Access to Mental Health Services for Youth With Medically Unexplained SymptomsAmerican Journal of Bioethics 18 (5): 29-31. 2018.
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15Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate ActionAmerican Journal of Bioethics 21 (4): 98-99. 2021.As medicine and science advance, new ethical questions emerge. Over time, deliberation and analysis result in a somewhat settled approach to a problem. Often the settled approach is based on group...
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15Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline ResultsAJOB Empirical Bioethics 13 (3): 152-165. 2022.
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14Gender and Medical Inspections at Ellis IslandConstellations (University of Alberta Student Journal) 7 (1): 15. 2016.For many immigrants to the United States, between 1892 and 1924, admission was contingent upon a medical inspection at an immigration centre, such as the one located at Ellis Island in the harbour of New York City. Much like passing through customs or security at airports today, these medical inspections were dreaded by immigrant travellers, and United States Government and Public Health Service publications show that these medical inspections were escalating in intensity and emphasis during the…Read more
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13Supporting Community-Academic Research Partnerships: Reflections from the GroundAmerican Journal of Bioethics 21 (10): 44-45. 2021.Currently, there is consensus that community engagement and partnerships are essential to inclusive patient-centered clinical research. Yet there is variation about what it means to do this well an...
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12Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease ResearchAmerican Journal of Bioethics 20 (4): 8-10. 2020.Volume 20, Issue 4, May 2020, Page 8-10.
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12Researcher Obligations to Participants in Novel COVID-19 Vaccine ResearchAmerican Journal of Bioethics 23 (10): 119-120. 2023.The rapid development of COVID-19 vaccines in 2020 involved an unprecedented clinical research initiative. The case here involves a Phase I clinical trial of “second-generation” COVID-19 vaccines d...
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12Conflicts of Interest and Recommendations for Clinical Treatments That Benefit ResearchersAmerican Journal of Bioethics 20 (10): 90-91. 2020.Volume 20, Issue 10, October 2020, Page 90-91.