•  10
    Black Women and Babies Matter
    with Bree L. Andrews
    American Journal of Bioethics 21 (2): 93-95. 2021.
    Black women and their babies matter. In this commentary, we explore the current challenges that Black women face when pregnant and what is needed to ensure an anti-racist approach to prenatal and p...
  • Adding Another Voice to the Living Donor Kidney Transplant Discussions at the CIBA Symposium of 1966
    with Jackie Y. Wang and J. Richard Thistlethwaite
    Perspectives in Biology and Medicine 58 (4): 379-394. 2015.
  •  19
    Attitudes of African-American parents about biobank participation and return of results for themselves and their children
    with Colin M. E. Halverson
    Journal of Medical Ethics 38 (9): 561-566. 2012.
    Introduction Biobank-based research is growing in importance. A major controversy exists about the return of aggregate and individual research results. Methods The authors used a mixed-method approach in order to study parents' attitudes towards the return of research results regarding themselves and their children. Participants attended four 2-h, deliberative-engagement sessions held on two consecutive Saturdays. Each session consisted of an educational presentation followed by focus-group disc…Read more
  •  2
    Health Care Surrogacy Laws Do Not Adequately Address the Needs of Minors
    with Rupali Gandhi, Erin Talati Paquette, and Erin Flanagan
    Hastings Center Report 50 (2): 16-18. 2020.
  •  9
    Prisoners as Living Donors: A Vulnerabilities Analysis
    with J. Richard Thistlethwaite
    Cambridge Quarterly of Healthcare Ethics 27 (1): 93-108. 2018.
  •  12
    Living Donation by Individuals with Life-Limiting Conditions
    with J. Richard Thistlethwaite
    Journal of Law, Medicine and Ethics 47 (1): 112-122. 2019.
    The traditional living donor was very healthy. However, as the supply-demand gap continues to expand, transplant programs have become more accepting of less healthy donors. This paper focuses on the other extreme, asking whether and when individuals who have life-limiting conditions should be considered for living organ donation. We discuss ethical issues raised by 1) donation by individuals with progressive severe debilitating disease for whom there is no ameliorative therapy; and 2) donation b…Read more
  • Children as Living Donors
    with J. Thistlethwaite
    In David Rodríguez-Arias, Aviva Goldberg & Rebecca Greenberg (eds.), Ethical Issues in Pediatric Organ Transplantation, Springer Verlag. 2016.
  •  18
    Respecting Choice in Definitions of Death
    Hastings Center Report 48 (S4). 2018.
  •  9
    Developing an ethics framework for living donor transplantation
    with J. Richard Thistlethwaite
    Journal of Medical Ethics 44 (12): 843-850. 2018.
    Both living donor transplantation and human subjects research expose one set of individuals to clinical risks for the clinical benefits of others. In the Belmont Report, the National Commission for the Protection of Human Subjects of Biomedical and Behavior Research articulated three principles to serve as the basis for a research ethics framework: respect for persons, beneficence and justice. In contrast, living donor transplantation lacks a framework. In this manuscript, we adapt the three pri…Read more
  •  7
    Pediatric Decision Making Requires Both Guidance and Intervention Principles
    with Erin Talati Paquette
    American Journal of Bioethics 18 (8): 44-46. 2018.
  •  8
    Just CaringWomen & Children in Health Care: An Unequal Majority
    with Mary Briody Mahowald
    Hastings Center Report 25 (1): 47. 1995.
  •  25
    The Best Interest Standard: Same Name but Different Roles in Pediatric Bioethics and Child Rights Frameworks
    with Alissa Hurwitz Swota
    Perspectives in Biology and Medicine 60 (2): 186-197. 2017.
    The "best interest of the child" standard is central to both pediatric bioethics and the child rights community. In pediatric bioethics in the United States, the best interest of the child standard is cited as the guidance principle for parental decision-making.1 Likewise, in the child rights community, the best interest of the child standard is "of paramount consideration" ). Both approaches also recognize parental rights and responsibilities and support a role for the maturing child in the dec…Read more
  •  11
    Ethical and Logistical Issues Raised by the Advanced Donation Program “Pay It Forward” Scheme
    with James R. Rodrigue and Robert M. Veatch
    Journal of Medicine and Philosophy 42 (5): 518-536. 2017.
    The advanced donation program was proposed in 2014 to allow an individual to donate a kidney in order to provide a voucher for a kidney in the future for a particular loved one. In this article, we explore the logistical and ethical issues that such a program raises. We argue that such a program is ethical in principle but there are many logistical issues that need to be addressed to ensure that the actual program is fair to both those who do and do not participate in this program.
  •  18
    Genetic Exceptionalism vs. Paradigm Shift: Lessons from HIV
    Journal of Law, Medicine and Ethics 29 (1): 141-148. 2001.
  •  9
    Disclosing misattributed paternity
    Bioethics 10 (2): 114-130. 1996.
    ABSTRACTIn 1994, the Committee on Assessing Genetic Risks of the Institute of Medicine published their recommendations regarding the ethical issues raised by advances in genetics. One of the Committee's recommendation was to inform women when test results revealed misattributed paternity, but not to disclose this information to the women's partners. The Committee's reason for withholding such information was that “'genetic testing should not be used in ways that disrupt families”. In this paper,…Read more
  •  10
    Theory and Practice of Pediatric Bioethics
    Perspectives in Biology and Medicine 58 (3): 267-280. 2015.
    The fundamental principle of modern-day bioethics is that “the competent adult has the right to accept or refuse all medical care, including life-saving medical care,” a principle that has been upheld by the U.S. Supreme Court in Bouvia v. Superior Court ) and Cruzan v. Director, Missouri Department of Health ). If the adult lacks decision-making capacity, a surrogate can speak on his or her behalf. The adult may have chosen his or her surrogate through an advance directive; if not, laws assign …Read more
  •  5
    The genetic testing and screening of children has been fraught with controversy since Robert Guthrie developed the bacterial inhibition assay to test for phenylketonuria and advocated for rapid uptake of universal newborn screening in the early 1960s. Today with fast and affordable mass screening of the whole genome on the horizon, the debate about when and in what scenarios children should undergo genetic testing and screening has gained renewed attention. United States professional guidelines …Read more
  •  18
    Religious Exemptions to the Immunization Statutes: Balancing Public Health and Religious Freedom
    with Timothy J. Aspinwall
    Journal of Law, Medicine and Ethics 25 (2-3): 202-209. 1997.
    In February 1997, the Committee on Bioethics of the American Academy of Pediatrics updated its position on religious exemptions to medical care. In its earlier statement, the committee noted that forty-four states have religious exemptions to the child abuse and neglect statutes, and they argued for the repeal of these exemptions. The committee did not indude in its statement a position on religious exemptions to childhood immunization requirements that exist in forty-eight states, although this…Read more
  •  10
    Patient Confidentiality and the Surrogate's Right to Know
    with Lynn A. Jansen
    Journal of Law, Medicine and Ethics 28 (2): 137-143. 2000.
    Physicians treating newly incapacitated patients often must navigate surrogate decision-makers through a difficult course of treatment decisions. Such a process can be complex. Physicians must not only explain the medical facts and prognosis to the surrogate, but also attempt to ensure that the surrogate arrives at decisions that are consistent with the patient's own values and wishes. Where these values and wishes are unknown, physicians must help surrogates make decisions that reflect the pati…Read more
  •  14
    In Defense of the Hopkins Lead Abatement Studies
    Journal of Law, Medicine and Ethics 30 (1): 50-57. 2002.
    In August 2001, the Maryland Court of Appeals harshly criticized the Kennedy Krieger Institute of Johns Hopkins University for knowingly exposing poor children to lead-based paint. The court’s decision made national news, and is worth examining because it raises several very important issues for research ethics.The research conducted by the Institute was an attempt to understand how successful different lead abatement programs were in reducing continued lead exposure to children. Previously, Jul…Read more
  •  6
    Genetic Exceptionalism vs. Paradigm Shift: Lessons from HIV
    Journal of Law, Medicine and Ethics 29 (2): 141-148. 2001.
    The term “exceptionalism” was introduced into health care in 1991 when Bayer described “HIV exceptionalism” as the policy of treating the human immunodeficiency virus different from other infectious diseases, particularly other sexually transmitted diseases. It was reflected in the following practices: pre- and post-HIV test counseling, the development of specific separate consent forms for HIV testing, and stringent requirements for confidentiality of HIV test results. The justification for the…Read more
  •  6
    Solid Organ Donation between Strangers
    Journal of Law, Medicine and Ethics 30 (3): 440-445. 2002.
    In August 2000, Arthur Matas and his colleagues de scribed a protocol in which their institution began to accept as potential donors, individuals who came to the University of Minnesota hospital offering to donate a kidney to any patient on the waiting list. Matas and his colleagues refer to these donors as nondirected donors by which is meant that the donors are altruistic and that they give their organs to an unspecified pool of recipients with whom they have no emotional relationship. This pa…Read more
  •  5
    All Donations Should Not Be Treated Equally: A Response to Jeffrey Kahn's Commentary
    Journal of Law, Medicine and Ethics 30 (3): 448-451. 2002.
    Jeffrey Kahn and I agree that organ donation by altruistic strangers is acceptable, and that the organ procured this way ought to be allocated equitably. Our agreement in principle, however, is challenged in the details of its application. Specifically, I want to focus on three issues raised by Kahn that merit further discussion: whether relationships matter; how kidneys should be allocated; and the ethical acceptability of the expanded donor pool.
  •  7
    Heterozygote Carrier Testing in High Schools Abroad: What are the Lessons for the U.S.?
    Journal of Law, Medicine and Ethics 34 (4): 753-764. 2006.
    To promote informed reproductive decisions, prenatal carrier testing is offered to women and couples to provide information about the risk of having a child with one or more genetic conditions. Tay Sachs Disease was one of the first conditions for which prenatal carrier testing was developed. Today, many additional conditions can be tested for, depending on prospective parental interest, family history, or ethnicity. Interestingly, most individuals and couples do not request prenatal carrier inf…Read more
  •  12
    Using interactive theatre to help fertility providers better understand sexual and gender minority patients
    with Lesley A. Tarasoff, Rachel Epstein, Datejie C. Green, and Scott Anderson
    Medical Humanities 40 (2): 135-141. 2014.
  •  5
    The Moral and Legal Need to Disclose Despite a Certificate of Confidentiality
    with Erin Talati Paquette
    American Journal of Bioethics 14 (10): 51-53. 2014.
    No abstract
  • Kekes, J.-Against Liberalism
    Philosophical Books 39 267-268. 1998.