•  25
    European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards
    with Oliver Feeney, Gabriele Werner‐Felmayer, Helena Siipi, Markus Frischhut, Ursela Barteczko, Lars Øystein Ursin, Shai Linn, Heike Felzmann, Dušanka Krajnović, John Saunders, and Vojin Rakić
    Developing World Bioethics 20 (1): 27-37. 2020.
    The effective collection and management of personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoples’ health status. With developments in ICT data sharing capabilities, electronic personal health records (ePHRs) are increasingly replacing less transportable paper records. ePHRs offer further advantages of improving accuracy and completeness of information and seem tailored for rapidly displaced and mobile populations. Vario…Read more
  •  84
    Ethical sharing of health data in online platforms- which values should be considered?
    with Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, and Vojin Rakic
    Life Sciences, Society and Policy 13 (1): 1-27. 2017.
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of t…Read more
  •  6
    Naturalizing Responsibility
    Cambridge Quarterly of Healthcare Ethics 25 (4): 700-711. 2016.