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4Putting a Face on WET RecipientsAmerican Journal of Bioethics 24 (5): 81-85. 2024.I have at least four close friends who seem to be ideal qualified recipients of WET. My friends have a variety of eyes: some prosthetic, some wandering, some misaligned, some absent, some shrouded...
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Velvet Eugenics : In the Best Interests of Our Future Children?In Neal Baer (ed.), The promise and peril of CRISPR, Johns Hopkins University Press. 2024.
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4William of Malmesbury: Gesta Pontificum AnglorumOxford University Press UK. 1998.William of Malmesbury's Regesta Regum Anglorum is one of the great histories of England, and one of the most important historical works of the European Middle Ages. Although its focus is national, its scope encompasses most of Western Europe and beyond, providing a full-scale account of the First Crusade. Apart from its formidable learning, it is characterized by narrative skill and entertainment value - with topics including unpowered flight and Henry I's zoo. This edition in the Oxford Medieva…Read more
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10William of Malmesbury: Gesta Pontificum Anglorum: The History of the English Kings: Volume IOxford University Press UK. 1998.William of Malmesbury's Regesta Regum Anglorum is one of the great histories of England, and one of the most important historical works of the European Middle Ages. Although its focus is national, its scope encompasses most of Western Europe and beyond, providing a full-scale account of the First Crusade. Apart from its formidable learning, it is characterized by narrative skill and entertainment value - with topics including unpowered flight and Henry I's zoo. This edition in the Oxford Medieva…Read more
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2Extraordinary Bodies: Figuring Physical Disability in American Culture and LiteratureColumbia University Press. 1997.Rosemarie Garland Thomson examines disabled figures in sentimental novels such as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, African-American novels by Toni Morrison and Audre Lorde, and the popular cultural ritual of the freak show.
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467Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health CareHastings Center Report 50 (3): 28-32. 2020.In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements …Read more
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7Staring: how we lookOxford University Press. 2009.Drawing on examples from art, media, fashion, history and memoir, the author tackles a basic human interaction which has remained curiously unexplored, the human stare. She defines staring, explores the biological and psychological factors that motivate it, and considers the targets and the effects of the stare.
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21When Anti-Discrimination DiscriminatesAmerican Journal of Bioethics 23 (9): 35-38. 2023.An attempt to reduce disability discrimination can do more harm than the ostensible discrimination itself. Such is the case with Shavelson et al.’s (2023) argument for equal access to medical aid i...
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11Narrative Equity in Genomic Screening at the Population LevelAmerican Journal of Bioethics 23 (7): 121-123. 2023.Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening programs at the population level. Their analysis offers two interrelated reasons for this recommendation: f...
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5What Du Bois and I Know About Dignity of RiskPerspectives in Biology and Medicine 65 (2): 171-178. 2022.ARRAY
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25When Better Becomes WorseAmerican Journal of Bioethics 19 (7): 24-26. 2019.Volume 19, Issue 7, July 2019, Page 24-26.
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17Unexpected Creatures: Procreative Liberty and the Frankenstein BalletHastings Center Report 48 (6): 18-20. 2018.One of the most recent and original adaptations of Mary Wollstonecraft (Godwin) Shelley's Frankenstein; or, The Modern Prometheus (1818) is the ballet version choreographed by Liam Scarlett and performed by the Royal Ballet in 2016 and the San Francisco Ballet in 2017 and 2018. What emerges from this translation is an economical, emotionally wrenching, and visually elegant drama of family tragedy from which we can draw a cautionary tale about contemporary bioethical dilemmas in family making tha…Read more
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7The Hypothetical Healthy NewbornIn Megan A. Allyse & Marsha Michie (eds.), Born Well: Prenatal Genetics and the Future of Having Children, Springer Verlag. pp. 81-91. 2021.This chapter considers the hypothetical healthy newborn as a representation, an aspirational abstract ideal rendered through a variety of discourses. Exploring the cultural work of the hypothetical healthy newborn figure can help clarify the moral conflict at the heart of a pregnant woman's dual obligation to her own best interests and the best interest of her future child, and can help point us toward an alternative moral conception of full personhood as vitality, rather than conformity to the …Read more
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269The Case for Conserving DisabilityJournal of Bioethical Inquiry 9 (3): 339-355. 2012.It is commonly believed that disability disqualifies people from full participation in or recognition by society. This view is rooted in eugenic logic, which tells us that our world would be a better place if disability could be eliminated. In opposition to this position, I argue that that disability is inherent in the human condition and consider the bioethical question of why we might want to conserve rather than eliminate disability from our shared world. To do so, I draw together an eclectic…Read more
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209Misfits: A Feminist Materialist Disability ConceptHypatia 26 (3): 591-609. 2011.This article offers the critical concept misfit in an effort to further think through the lived identity and experience of disability as it is situated in place and time. The idea of a misfit and the situation of misfitting that I offer here elaborate a materialist feminist understanding of disability by extending a consideration of how the particularities of embodiment interact with the environment in its broadest sense, to include both its spatial and temporal aspects. The interrelated dynamic…Read more
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6Julia Pastrana, the “extraordinary lady”Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 11 (1): 35-49. 2017.
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44How We Got to CRISPR: The Dilemma of Being HumanPerspectives in Biology and Medicine 63 (1): 28-43. 2020.we always get to this difficult conversation one way or another when I'm talking to friends who have kids with disabilities. It goes like this: "If there had been a test for autism when my wife was pregnant with our son," my close friend tells me, "she would definitely have had an abortion." He tells me this with candor because he knows I know that this does not mean that he regrets having the son, grown up now, that they do have. Parents with disabled children are usually rightfully wary about …Read more
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32Human Biodiversity Conservation: A Consensual Ethical PrincipleAmerican Journal of Bioethics 15 (6): 13-15. 2015.
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88Eugenic World Building and Disability: The Strange World of Kazuo Ishiguro's Never Let Me GoJournal of Medical Humanities 38 (2): 133-145. 2017.A crucial challenge for critical disability studies is developing an argument for why disabled people should inhabit our democratic, shared public sphere. The ideological and material separation of citizens into worthy and unworthy based on physiological variations imagined as immutable differences is what I call eugenic world building. It is justified by the idea that social improvement and freedom of choice require eliminating devalued human traits in the interest of reducing human suffering, …Read more
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5Evaluating the Lives of OthersAmerican Journal of Bioethics 22 (9): 30-33. 2022.Commentary on Rob Sparrow’s (2022) target article, “Human Germline Genome Editing: On the Nature of Our Reasons to Genome Edit,” should consider the collection of articles Sparrow has authored on g...
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21Disability Cultural Competence for All as a ModelAmerican Journal of Bioethics 21 (9): 26-28. 2021.Berger and Miller assert that race and ethnicity based cultural competence is a failure because medicine grounds its conceptualization of cultural competence on a “flawed” understanding of r...
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36Disability Bioethics: From Theory to PracticeKennedy Institute of Ethics Journal 27 (2): 323-339. 2017.What has come to be called critical disability studies is an emergent field of academic research, teaching, theory building, public scholarship, and something I'll call "educational advocacy." The critical part of critical disability studies suggests its alignment with areas of intellectual inquiry, sometimes awkwardly called identity studies, rooted in the political and social transformations of the mid-20th century brought forward by the broad civil and human rights movement. These movements p…Read more
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16A Cross-Cultural Neuroethics View on the Language of DisabilityAmerican Journal of Bioethics Neuroscience 10 (2): 91-92. 2019.The AJOB Neuroscience insight article, “A Cross-Cultural Neuroethics View on the Language of Disability,” gathers social science empirical data detailing the words that structure the human variatio...
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66Staring: how we lookOxford University Press. 2009.In the first book of its kind, Garland-Thomson defines staring, explores the factors that motivate it, and considers the targets and the effects of the stare.
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17Redrawing the Boundaries of Feminist Disability StudiesInvalid Women: Figuring Feminine Illness in American Fiction and Culture, 1840-1940Monstrous ImaginationTattoo, Torture, Mutilation, and Adornment: The Denaturalization of the Body in Culture and TextFeminism and Disability (review)Feminist Studies 20 (3): 582. 1994.