•  4
    Putting a Face on WET Recipients
    American Journal of Bioethics 24 (5): 81-85. 2024.
    I have at least four close friends who seem to be ideal qualified recipients of WET. My friends have a variety of eyes: some prosthetic, some wandering, some misaligned, some absent, some shrouded...
  •  4
    William of Malmesbury: Gesta Pontificum Anglorum
    with R. A. B. Mynors and M. Winterbottom
    Oxford University Press UK. 1998.
    William of Malmesbury's Regesta Regum Anglorum is one of the great histories of England, and one of the most important historical works of the European Middle Ages. Although its focus is national, its scope encompasses most of Western Europe and beyond, providing a full-scale account of the First Crusade. Apart from its formidable learning, it is characterized by narrative skill and entertainment value - with topics including unpowered flight and Henry I's zoo. This edition in the Oxford Medieva…Read more
  •  10
    William of Malmesbury: Gesta Pontificum Anglorum: The History of the English Kings: Volume I
    with R. A. B. Mynors and M. Winterbottom
    Oxford University Press UK. 1998.
    William of Malmesbury's Regesta Regum Anglorum is one of the great histories of England, and one of the most important historical works of the European Middle Ages. Although its focus is national, its scope encompasses most of Western Europe and beyond, providing a full-scale account of the First Crusade. Apart from its formidable learning, it is characterized by narrative skill and entertainment value - with topics including unpowered flight and Henry I's zoo. This edition in the Oxford Medieva…Read more
  •  2
    Rosemarie Garland Thomson examines disabled figures in sentimental novels such as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, African-American novels by Toni Morrison and Audre Lorde, and the popular cultural ritual of the freak show.
  •  467
    Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
    with Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Joel Michael Reynolds, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Anita Tarzian, Doron Dorfman, and Joseph J. Fins
    Hastings Center Report 50 (3): 28-32. 2020.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements …Read more
  •  7
    Staring: how we look
    Oxford University Press. 2009.
    Drawing on examples from art, media, fashion, history and memoir, the author tackles a basic human interaction which has remained curiously unexplored, the human stare. She defines staring, explores the biological and psychological factors that motivate it, and considers the targets and the effects of the stare.
  •  21
    When Anti-Discrimination Discriminates
    with Harold Braswell
    American Journal of Bioethics 23 (9): 35-38. 2023.
    An attempt to reduce disability discrimination can do more harm than the ostensible discrimination itself. Such is the case with Shavelson et al.’s (2023) argument for equal access to medical aid i...
  •  11
    Narrative Equity in Genomic Screening at the Population Level
    with S. A. Larson
    American Journal of Bioethics 23 (7): 121-123. 2023.
    Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening programs at the population level. Their analysis offers two interrelated reasons for this recommendation: f...
  •  5
    What Du Bois and I Know About Dignity of Risk
    Perspectives in Biology and Medicine 65 (2): 171-178. 2022.
    ARRAY
  •  25
    When Better Becomes Worse
    American Journal of Bioethics 19 (7): 24-26. 2019.
    Volume 19, Issue 7, July 2019, Page 24-26.
  •  17
    Unexpected Creatures: Procreative Liberty and the Frankenstein Ballet
    Hastings Center Report 48 (6): 18-20. 2018.
    One of the most recent and original adaptations of Mary Wollstonecraft (Godwin) Shelley's Frankenstein; or, The Modern Prometheus (1818) is the ballet version choreographed by Liam Scarlett and performed by the Royal Ballet in 2016 and the San Francisco Ballet in 2017 and 2018. What emerges from this translation is an economical, emotionally wrenching, and visually elegant drama of family tragedy from which we can draw a cautionary tale about contemporary bioethical dilemmas in family making tha…Read more
  •  7
    The Hypothetical Healthy Newborn
    In Megan A. Allyse & Marsha Michie (eds.), Born Well: Prenatal Genetics and the Future of Having Children, Springer Verlag. pp. 81-91. 2021.
    This chapter considers the hypothetical healthy newborn as a representation, an aspirational abstract ideal rendered through a variety of discourses. Exploring the cultural work of the hypothetical healthy newborn figure can help clarify the moral conflict at the heart of a pregnant woman's dual obligation to her own best interests and the best interest of her future child, and can help point us toward an alternative moral conception of full personhood as vitality, rather than conformity to the …Read more
  •  269
    The Case for Conserving Disability
    Journal of Bioethical Inquiry 9 (3): 339-355. 2012.
    It is commonly believed that disability disqualifies people from full participation in or recognition by society. This view is rooted in eugenic logic, which tells us that our world would be a better place if disability could be eliminated. In opposition to this position, I argue that that disability is inherent in the human condition and consider the bioethical question of why we might want to conserve rather than eliminate disability from our shared world. To do so, I draw together an eclectic…Read more
  •  209
    Misfits: A Feminist Materialist Disability Concept
    Hypatia 26 (3): 591-609. 2011.
    This article offers the critical concept misfit in an effort to further think through the lived identity and experience of disability as it is situated in place and time. The idea of a misfit and the situation of misfitting that I offer here elaborate a materialist feminist understanding of disability by extending a consideration of how the particularities of embodiment interact with the environment in its broadest sense, to include both its spatial and temporal aspects. The interrelated dynamic…Read more
  •  6
    Julia Pastrana, the “extraordinary lady”
    Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 11 (1): 35-49. 2017.
  •  19
    Introduction
    with Martha Stoddard Holmes
    Journal of Medical Humanities 26 (2-3): 73-77. 2005.
  •  44
    How We Got to CRISPR: The Dilemma of Being Human
    Perspectives in Biology and Medicine 63 (1): 28-43. 2020.
    we always get to this difficult conversation one way or another when I'm talking to friends who have kids with disabilities. It goes like this: "If there had been a test for autism when my wife was pregnant with our son," my close friend tells me, "she would definitely have had an abortion." He tells me this with candor because he knows I know that this does not mean that he regrets having the son, grown up now, that they do have. Parents with disabled children are usually rightfully wary about …Read more
  •  32
    Human Biodiversity Conservation: A Consensual Ethical Principle
    American Journal of Bioethics 15 (6): 13-15. 2015.
  •  88
    A crucial challenge for critical disability studies is developing an argument for why disabled people should inhabit our democratic, shared public sphere. The ideological and material separation of citizens into worthy and unworthy based on physiological variations imagined as immutable differences is what I call eugenic world building. It is justified by the idea that social improvement and freedom of choice require eliminating devalued human traits in the interest of reducing human suffering, …Read more
  •  5
    Evaluating the Lives of Others
    American Journal of Bioethics 22 (9): 30-33. 2022.
    Commentary on Rob Sparrow’s (2022) target article, “Human Germline Genome Editing: On the Nature of Our Reasons to Genome Edit,” should consider the collection of articles Sparrow has authored on g...
  •  21
    Disability Cultural Competence for All as a Model
    with Lisa I. Iezzoni
    American Journal of Bioethics 21 (9): 26-28. 2021.
    Berger and Miller assert that race and ethnicity based cultural competence is a failure because medicine grounds its conceptualization of cultural competence on a “flawed” understanding of r...
  •  36
    Disability Bioethics: From Theory to Practice
    Kennedy Institute of Ethics Journal 27 (2): 323-339. 2017.
    What has come to be called critical disability studies is an emergent field of academic research, teaching, theory building, public scholarship, and something I'll call "educational advocacy." The critical part of critical disability studies suggests its alignment with areas of intellectual inquiry, sometimes awkwardly called identity studies, rooted in the political and social transformations of the mid-20th century brought forward by the broad civil and human rights movement. These movements p…Read more
  •  16
    A Cross-Cultural Neuroethics View on the Language of Disability
    American Journal of Bioethics Neuroscience 10 (2): 91-92. 2019.
    The AJOB Neuroscience insight article, “A Cross-Cultural Neuroethics View on the Language of Disability,” gathers social science empirical data detailing the words that structure the human variatio...
  •  20
    What Her Body Taught : A Conversation
    with Brenda Jo Brueggemann and Georgina Kleege
    Feminist Studies 31 (1): 13-33. 2005.
  •  66
    Staring: how we look
    Oxford University Press. 2009.
    In the first book of its kind, Garland-Thomson defines staring, explores the factors that motivate it, and considers the targets and the effects of the stare.